posted
Hi. I was diagnosed in 2005 with Lyme through western blot while living in upstate NY. Since then I have moved to Maine. All of my symptoms say Lyme but the doctors continue saying "there is no treatment" or "we can not do anything for Lyme after your first treatment". Any assistance in finding a Lyme literate doctor for someone with no income and no insurance (I do not qualify for state healthcare because my symptoms still allow for gainful employment according to the state of Maine.) I do presently also have a disability case pending for the Lyme and other physical issues. Thank you
-------------------- CSF Posts: 3 | From Bangor Maine USA | Registered: Jun 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I'm so sorry you are going through this. The good news is that you found a wonderful support group, and people on here are very helpful and kind.
Can you travel to MD? The *vast, vast majority* of true LLMDs that can **actually** help you in the manner you need to be treated properly don't take insurance.
If you can travel to MD, I can send you a private message with a recommendation. He is reasonably priced in the world of Lyme, but still expensive.
Educating yourself about Lyme is essential. I recommend Dr. h's book, "Why can't I Get Better?" and "Cure Unknown" by Pamela Weintraub. For a quick and dirty, but very important and, in my opinion, accurate overview, watch "Under Our Skin." But I highly recommend you get deep knowledge of this disease and read the aforementioned books.
Have you been tested for coinfections?
Let me know if you can travel to MD. Welcome to lymenet .
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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posted
I can not travel due to other health issues and lack of employment due to all health issues as a whole. I was diagnosed and treated in NY in 2005 but no one here will even acknowledge the blood test results etc. No one has ever tested for co infections they just keep coming up with other causes for my symptoms which the treatments they give fail to help. The current physician I see is a resident from Minnesota. Not very Lyme literate at all. All she keeps saying is there is no help for chronic Lyme according to the CDC. So I am kind of in a pickle. Thank you for your fast response and the welcome here.
-------------------- CSF Posts: 3 | From Bangor Maine USA | Registered: Jun 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Hi. Please read the following link about protecting your privacy. Posting your real name is clearly your decision. I just want you to know about this for your own sake. Best.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Scroll down for financial help, etc., available from several sources. Call them to ask if they know of any LLMDs or LL Naturopathic doctors who could help you.
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%. View on www.lymetap.com
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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