posted
My 4 year old daughter has a bulls eye on the back of her neck and has been diagnosed with Lymes today. She began Ammoxicilan this evening.
We are a military family in between duty stations. We have been living in CA and are moving to Hawaii in 2 weeks but are visiting family in Minnesota, where my daughter got Lymes. I would like to see a LLMD before we leave MN (we leave in 2 weeks) to insure we are being treated effectively and doing this correct from the beginning to avoid problems down the road.
Would also appreciate a doctor referral for Hawaii (Oahu) since we will need to do follow on care/check ups there. I am worried there are fewer LLMDs in Hawaii as it isn't an area known for deer ticks or Lymes. So seeing a doctor before we leave would be beneficial.
I really appreciate your help!
Thank you
Posts: 3 | From Minnesota/Hawaii | Registered: Jul 2016
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The bull's-eye rash is definitive for Lyme. Your dear daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. She needs to go where they are.
I don't know of any in Hawaii - contact the HI Lyme Support Groups listed below. They would know better about Hawaii.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
When you call for an appointment, ask if they have any cancellations or a waiting list (call every day!). Patients have been able to get in earlier by doing this.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If you go to www.MarylandLyme.org and look under "Doctor Referrals" (menu to your left) you will find a site with doctor's contact information for the USA, including information on alternative doctors, labs and support groups.
You can print out a one page handout with the current official Lyme disease guidelines information regarding treating a tick bite. (See if what you were given matches the recommendations.) If not...
You can take that one pager to any local doc and see if they will treat. With paper in hand - with them knowing YOU know what is suppose to happen- they are more likely to treat than not.
One page is for adult treatment and another has info for treating children with a tick bite. It's on the main page at the Treat The Bite link above.
Be safe in your travels and thank you so very much for your service.
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