posted
My 11 year old son was just diagnosed with Lyme today but pediatrician isn't aggressive and says Chronic Lyme is a myth, so I need someone knowledgable.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Good for you for finding us. You won't get anywhere until you get him to a doc who specializes in treating lyme disease.
All of our doctors have been miseducated by the Infectious Diseases Society of America (IDSA) to believe that lyme is rare and easily cured. But, the truth is that it is more than an epidemic and it is extremely difficult to cure if not caught early.
A Boston TV station did a show on the lyme disease controversy a few years ago. Here is the Boston Chronicle video on YouTube:
I suggest you watch this video a few times. It explains the lyme disease controversy and the role the IDSA plays in making it difficult for a person to get good lyme treatment.
I suggest you change the title of your post to add New Hampshire and Massachusetts.
Not everybody knows where Nashua is. And, many have lists of docs just for certain states, so they look for the state in the title of the post.
There are very few lyme doctors and even fewer pediatric lyme doctors--very few of those. So, be prepared to travel beyond Mass and NH if necessary to get to someone good.
Until others come along, contact the lyme support groups near you--see Support Groups on the left side of the page. Contact those near you and ask for who is good and where they are taking their children.
In addition, I suggest you read the Burrascano Lyme Treatment Guidelines found here:
This document is not an easy read because it was written to doctors, but it will give you your education on this disease which is really many diseases.
The more you study it, the more you will understand of what the lyme specialist is saying, and the better able you will be to judge whether your child is getting good treatment or not. An educated patient/parent is a must with this disease.
Welcome to LymeNet! We will help you here all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
To edit the title of your post or its contents, click on the paper and pencil icon above the post.
Posts: 9931 | From Maryland | Registered: Dec 2007
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You should add "NH" in the title of your post, so people will know specifically where you are looking. To do that, click the pencil/paper icon, make your changes, then click "Edit Post".
Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
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