posted
I'm looking for aLLMD in northwest Pa for my husband. He contracted Lyme in 2007, but not diagnosed until 2008. He was treated with IV antibiotics, but continues with nerve pain, memory problems and confusion. Docs we've seen in past only say, " it will get better, or it won't" Help please !
Posts: 6 | From Erie Pa | Registered: Jul 2016
| IP: Logged |
Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. He needs to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I sent you what I have.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If you go to www.MarylandLyme.org and look under "Doctor Referrals" (menu to your left) you will find a site with doctor's contact information for the USA, including information on alternative doctors, labs and support groups.
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I will send you PM.
I live maybe near you and I ended up getting my best help from an alternative dr treating with herbs and supplements.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
sorry, I thought your post said northeast PA. good luck to you!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/