LymeNet Flash: Seeking Lyme Literate infectious disease doctor near Raleigh, North Carolina

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking Lyme Literate infectious disease doctor near Raleigh, North Carolina

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Topic: Seeking Lyme Literate infectious disease doctor near Raleigh, North Carolina

CyndiT
Junior Member
Member # 48334

posted

I need a Lyme Literate infectious disease doctor near Raleigh, NC (North Carolina) to whom I can take the results of my IGenex tests. I am looking for one like Dr. J, but someone who isn't as far away, if possible.

** edited to remove LLMD's name **

[ 07-12-2016, 10:36 AM: Message edited by: sixgoofykids ]

Posts: 1 | From Raleigh, North Carolina | Registered: Jul 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome back to Lymenet! PM sent for NC.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NorthCarolina/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

[ 07-25-2016, 05:18 PM: Message edited by: hopingandpraying ]

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
You may know all this already [as you got an Igenex test and do know of one LLMD's work you admire]

yet the term for the kind of doctor you request is tricky. So, just to be clear so you don't someone mistakenly get into the office of an ID doctor:

Infectious Disease doctors are typically connected with a medical clinic and they go only by the guidelines of the IDSA - Infectious Disease Society of America.

ID doctors usually do not treat lyme, though, might for a very short course of a single Rx only for a brand new acute case (and they certainly do not consider multi-faceted approach that is needed, the chronic state or assessment of all coinfections).

Most ID doctors do not even do the correct tests for lyme and then insist on a ridiculous "lotto ticket lineup" of specific numbers that are arbitrary. Many with lyme are damaged by this CDC requirement of ID doctors.

ID doctors are not the same as an LLMD, not even close - with the very rare exception.

hopingandpraying posts many good links for you. What might help explain why we say that ID doctors (Infectious Disease doctors) are not lyme literate is explained here:

http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-two-standards-of-care-revisited.html

Two Standards of Care Revisited: Should Lyme Patients Have A Choice?

By Lorraine Johnson, JD, MBA - 7th January 2015

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

MORE WAYS TO FIND A DOCTOR and WHY you need an LLMD

http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease

[Good to know this in case any ID doctor ever suggests the limited testing methods they use]
-

[ 07-14-2016, 01:45 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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