posted
I'm just outside of Portland but would consider going to Salem or anywhere pretty much within the state. I could go to Vancouver, Washington as well, or if all else fails anywhere in Washington.
I am disabled in an adult foster home with MS (misdiagnosed Lyme disease caught too far after it got so advanced that I'm now quadriplegic.)
This state requires that anything I put into my body must be ordered by Dr., and any other doctors must be ordered by your primary. Unfortunately, an ND, is much as I love them cannot order prescriptions unless also approved by the MD! Anyone who's been to these horrible close minded doctors knows what that entails.javascript:void(0)
The ideal situation would to be have my LLMD also be my primary.
Any help you can give me would be enormously appreciated. Please email me at [email protected]
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- First, I hope you are not using your real name so that you can maintain privacy. By posting your email, though, that can compromise your privacy.
So, You might want to log in each time to are on LymeNet to see if anyone has sent a PM (private message).
While you are most likely a wonderful person, many will be hesitant to email a blind email account for then their identity is instantly "out there".
PMs are safer for everyone, really, to communicate at least until you build some kind of relationship where you can feel surer about trading personal detail.
It is rare to have anyone from here from Oregon, so it's best to connect with the state network as soon as you can.
I don't usually "do" PMs as my energy is so [word loss, but not much of it] so will just post detail here that I hope helps.
--------
Welcome, though so sorry for why you are here. As you seem to know by now, MDs are very much against even hearing the word "lyme" in Oregon. And it's a very powerful force, from the top Oregon Medical Board (an IDSA stronghold), down to all the MDs.
Most MDs believe the lies they are told from the top about lyme being non-existent in the state and no big deal even if it were here and maybe offer very short treatment of one single drug for a brand new case that might be CDC positive.
Yet the few MDs who learn the truth about lyme have their hands tied, and careers threatened.
Again, very powerful forces at work here in a very systematic way. This issue went to the state legislature in 2014-2015 and got shot down by those very powerful forces.
So, there are no LLMDs in Oregon.
There are some LL NDs in Portland and, as all NDs are allowed by state law to be anyone's PCP (primary care provide)
and some LL NDs do take some kinds of insurance . . . there may be a way
AND, even if not one's PCP, allowed by state law to order any pharmaceutical they deem necessary. So, if you get a non-LL ND to be your PCP, they might allow you to "work with" a LL ND on your case for more specialized care.
I've just tossed out a few things to follow up on and wish I could help more. I suggest contacting the STATE lyme network as the person there is brilliant and so very helpful.
I wish I could write more on a personal level but I'm just barely hanging on so pretty much have to stick to the basics with writing.
I wish you well and I wish my words could open some good windows for you. I have to leave that to the state Oregon Lyme Network, though, so do connect. I have to think there are ways to make this work, somehow. -
[ 07-15-2016, 11:21 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Lyme Disease in Oregon - some background that helps explain the attitude of MDs in Oregon.
The Kaiser Papers – not by or from Kaiser Insurance but about how they deal with lyme inquiries. Also gives background regarding lack of lyme assessment / treatment in general, regardless of one’s insurance coverage.
OANP Urges Naturopathic Doctors & Patients to File Complaints to Insurance Division Urging Insurers to Comply with the ACA
Section 2706 - the provider non-discrimination provision of the Public Health Service Act as amended by the Affordable Care Act - went into effect on January 1, 2014.
Insurance plans issued on or after this date are now prohibited from discriminating against naturopathic physicians (or any other provider for that matter) when the ND is treating the same conditions or performing the same services that the insurer would otherwise cover.
After almost a year of OANP working with Oregon’s Insurance Division in advance of this law going into effect, it appears that the majority of insurers and insurance plans are in some way still violating this law.
How to find an ILADS educated LL professional in complementary fields (naturopathic, acupuncture, etc.)
Also includes article and book links by all kinds of LL authors - and information about herbal and nutritional supplements. A LL ND would know which are "direct" and which are more support.
Some of the books here may be of help. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Poster "Keebler" has given you some very good advice and information.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. None in OR.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
When calling for an appointment, ask about insurance and if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
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