posted
Hello, I am on here for my fiancé. She has been having a lot of health issues lately and has been to almost 10 doctors, none of whom can help.
She has had blood work done testing for a lot of stuff, include Lyme Disease...she tests positive for some of the strands, but the doctor tells her she doesn't have Lyme Disease because she doesn't show enough strands present.
She has had Lyme disease, I believe 3 times in her life, it may be 2 I'm no positive. One doctor years ago told her she has chronic Lyme.
We are kind of at a dead at at this point and she is ready to give up hope with getting healthy. We have a new 8 month old baby that she has a hard time caring for because of how miserable she feels lately.
She stumbled upon some information about Lyme Disease and all of her symptoms match dead on! But she keeps getting told she doesn't have it.
I'm trying to help her figure this out the best I can because she has a really hard time getting out of bed in the morning. I just recently started looking for Lyme Doctors and I'm having a little trouble.
I found one in north NJ but Dr G doesn't take insurance and it would cost almost $500 for initial visit. From what I've read so far on here, I guess this is something to expect.
Anyway, if anyone knows of a good Lyme Dr that takes insurance (Horizon NJ Health/Medicaid) it would be greatly appreciated!!
I also found another doctor whose website claims they take Horizon NJ health, I haven't called them yet, I wanted to see what people on here thought. The Doctor that takes the insurance is Dr H, in West Central NJ.
Anyway, any help at all anyone could give us would be so greatly appreciated. It hurts me so bad to see her suffering so much and I just want her to get better!
If I have to, I am more than willing to pay the almost $500 for her to see Dr G, but I just want to make sure she will be able to help my fiancé before spending that kind of money. Plus, I don't know how long I would be able to afford that if she needs numerous appointments?
Thank you all so much in advance for your help! And I wish everyone the best of luck with their conditions!! I see what it does to my fiancé and I know how horrible it can be
I look forward to hearing back from someone with some information. And if you need anymore information about our situation, please feel free to ask. I'm willing to do anything at this point!!
Thanks, M
Posts: 3 | From New Jersey | Registered: Aug 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Hi, I'm sorry you and your fiancée are going through this. Thank you for standing by her side. Most Lyme literate doctors don't take insurance. See why:
Can you travel to Maryland once every 4 months? First session in person, 2nd and 3rd over phone or via Skype, next is in person. Repeat. If so, there is a good LLMD that can get you in fairly quickly.
Also, I'm going to send you a private message. Please check your inbox in a few minutes.
Best.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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posted
Thanks for the quick reply. I had read the info about the insurance companies not allowing doctors to spend too much time on patients. I guess the insurance companies aren't happy with the billions of dollars they make, they need to make trillions each year.
I don't see why we wouldn't be able to make a trip to Maryland ever few months. It shouldn't be too far of a drive. Is it the eastern or western side of Maryland, cause that can change the time by several hours.
Either way, I'd be willing to take the drive if it helps her out. I'm guessing the Dr there doesn't take insurance?? Any idea of approximated cost for the visits?? And any additional costs for meds??
Obviously everyone's case is a little different from the next, and I don't expect exact figures...but any approximations on costs would help be better plan out our finances.
Thanks again!! M
Posts: 3 | From New Jersey | Registered: Aug 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Sending you a private message to answer your questions.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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Your fiance needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Scroll down for financial help, etc., available from several sources.
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%. View on www.lymetap.com
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/