I was recently diagnosed with lyme disease after having it for over a year. My health has been quite a struggle. I had brain surgery in September of 2016. During my recovery period I began to feel worse. No one was sure what it could be.
Ive been laughed at, told I was an idiot, completely dismissed, and passed of from neurologist to endocrinologist, and then back again. Finally I have a diagnosis.
The only problem is finding an LLMD. I love in florida but traveling isn't a problem for me, as I fly for free. The only thing would be doctors who accept insurance.
If anyone can please send me a list of doctors, I would be more than grateful. Location isn't important. If the doctor doesn't accept insurance, thats okay. I'll figure something out. I just want to feel better again.
Thank you so much!
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(breaking up a paragraph for easier reading for many here)
I am so sorry you have experienced such terrible treatment. Unfortunately, you are not alone, because many have gone through the same!
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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