posted
I have been misdiagnosed by drs in Fgo. Please help.If able going to sons wedding in Nov. in Los Angeles-Palm Springs area so could seek out LLMD drs out there. Was infected in Apr 2015 and again over Memorial weekend of this year. My eyes and brain now are affecting me too!
Posts: 3 | From Mpls | Registered: Aug 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. I don't know of any in ND/SD.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
posted
I sent you a PM already. I just read your post again and you mentioned eyes. I'm able to stop all eye symptoms by drinking mangosteen juice, an anti-inflamatory juice.
I like the Mango-Xan version as it's the most tart. It's carried in healthfood stores and online. I drink around an ounce a day.
It worked fairly quickly for me, and we're all different in how we respond to treatments.
This is actually a section for finding a doctor, and you're welcome to discuss anything in General Support and Medical Questions, including this discussion.
All the best - Robin
Posts: 13116 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Greetings!
If you go to www.VirginiaLyme.org you will see a "doctor referral" page on the menu to your left.
There is a Lyme treating doctor listed on the CA doctor referral page who is also a trained eye doctor- in Los Angeles (Dr. E. Leh). She also will work with patients via phone consults.
At that site you can also find names and contact information on Lyme treating professionals in all states that have them.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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