posted
I was treated once by an infectious disease specialist a year ago, but symptoms have come back just as bad. I was very ill for 8 years prior to diagnosis, and I grew up in the northeast and camped and hiked a lot. Tested CDC positive about 2 years ago and did IV Rocephin that eradicated my symptoms for about a year. Feeling very ill again and hoping to see a doctor that has Lyme experience
Thank you all
Posts: 1 | From Houston, TX | Registered: Sep 2016
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me
Frequent Contributor (1K+ posts)
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I think Lymetoo has a recommendation for Texas; I am venturing to say it could be a long wait, but I don't know.
I have a great recommendation for out of state, and most from TX end up traveling to get quality treatment. The doc I'm referring to can get you in rather quickly.
There are now Lyme docs out of state who will see you in person first visit, do a couple visits over the phone or Skype, then see you again in person. Repeat. He does this. I've seen him under a year and have made nice progress with him. Everyone I've recommended him to has been pleased.
Texas is in a sorry state of affairs for Lyme treatment.
I'm sorry you are going through this. If Lymetoo doesn't see this post, you can do a search under "directory," type in her name, and send her a private message.
Best wishes
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Please read the following about LLMDs and Texas which was recently posted about TX:
"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.
Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.
Because of the sorry state of affairs in Texas, many folks from Texas are coming to the East Coast for testing and treatment for Lyme disease and it's co-infections.
At least half of all Lyme patients travel out of state for their care. The doc is the key to the diagnosis and for getting rid of this horrendous disease. I can't emphasize that enough-the doc is the key.
This is what I wrote to another Texan in Sept. Look at the following thread to see the discussion:
Btw - I know you are new to Lyme, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
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