**Please read this post regarding contacting ILADS which was written by a very knowledgeable poster on Lymenet:
"Just want to warn you that ILADS knows nothing about the doctors whose names they give out. They will give out the name of any doctor who wants his or her name given out.
It doesn't mean the doctor is good or even that the doctor believes in chronic Lyme or believes that a person can have Lyme and have a negative Lyme test. It is simply a referral service operated by ILADS. They treat all doctors equally.
So, this is NOT a good way to get a doctor's name. Many have gotten lousy doctors this way and come on this board and complained about it. I have heard that ILADS is now aware of the problem, but they don't know what to do about it.
So, you need to get input from other Lyme patients and Lyme support groups about any doctor who is recommended by ILADS. You can post in "Seeking a Doctor" forum using just the first letter of the doc's last name and the state.
Or, you can call all the Lyme support groups near you. See Support Groups on the left side of the Lymenet page.
When you contact the support groups, ask them what doctors they recommend and who is having success curing patients.
You must do a lot of research before going to a Lyme doctor. No sense learning the hard way. Don't want you to waste your time and money.
New folks often don't know that they need to do a lot of work up front before picking their first Lyme doctor. So, they often pick a lousy first Lyme doctor.
We can help you avoid such a mistake."
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
posted
Wish I could help, but actually I'm looking for one too...same place, ATL. Good luck!
Posts: 5 | From Atlanta, GA | Registered: Sep 2016
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
When you go south of Washington, D.C., there are very few lyme doctors and virtually no good ones. I know of none. And, I know of no good ones in Florida anymore.
I suggest that you be willing to travel to the D.C. area. You can get very good care here. Let me know if you want the name of the doc I am currently recommending.
You only have to appear in person once every 3 months.
At least half of all lyme patient go out of state for their care and many fly.
Welcome to LymeNet! We will help you here all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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I know you are new to Lymenet, but you should write a new post instead of adding on to an existing one, because most don't re-read old posts. That way, more people will see them and respond.
PM sent for FL.
Posts: 8981 | From Illinois | Registered: May 2006
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