posted
It's between those three right now for me. I have an appointment with Dr. M in Michigan, but it's not until January. I could see Dr. B in New York (he is not the Dr. B you may think, this one is outside of NYC) or Dr. J in Maryland sooner. I have heard good things about Dr. J but know less about the other two. All info is appreciated! Thanks!
Posts: 81 | From Southern Ontario | Registered: Jul 2016
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What is so enjoyable about her book is her self-deprecating humor combined with her ability not to pity herself in spite of her very difficult challenges, both before and during treatment.
In the book she explains that Dr. J. places all of his patients on a GF diet, whether they have celiac or not, because so many of the ILADS doctors have observed and have stressed during ILADS conferences that the Lyme patient who follow a strict GF diet do much better in every way that their Lyme patients who don't.
You have a big advantage because you already understand the GF lifestyle and how important it is to avoid all hints and traces of "hidden gluten" and "cross contamination" with gluten.
After reading the book, you will be able to appreciate that Dr. J. uses the pulsed antibiotic approach, including combinations of antibiotics, very aggressively. He also supports detoxification with IV glutathione and by recommending weekly lymphatic drainage massage.
I'm honestly envious of Lyme patients today because the ILADS docs know so much more now than they did 15 years ago when our daughter was undergoing antibiotic treatment. That's why they are having a much higher rate of success now than they did in decades past.
They also know how to transition their patients back off of antibiotics when it's time to do so and how to help them maintain their remission with alternative natural means.
Yes, you would be in very good hands with Dr. J, no doubt about that at all. Being from the South, I'm not familiar with either of the other two doctors whom you asked about though.
It's now available in an electronic version (Kindle) which has the advantage of being less costly, but the main advantage is that you can click on words to find electronic links, etc. It's a hefty book in hard back, but the electronic version makes it easy to skip around instead of feeling the need to read it straight through. (MOO - my opinion only)
IMO, a more suitable title for this book is: Everything you need to know about Lyme, but didn't know to ask." This book also mentions both celiac and gluten in several different places.
Posts: 4563 | From TX | Registered: Sep 2002
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Hey, Tx Lyme Mom, I think you are talking about the Dr. J in Washington, D.C. That is not the doctor that lymeandceliac is talking about.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Oh...I bought the book anyway! LOL Yeah, this one is in a DC suburb, but in Maryland. I wish we could use real names LOL but the book will be good anyway!
Posts: 81 | From Southern Ontario | Registered: Jul 2016
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posted
Bumping this - I'm surprised there's not more out there on Dr. M in Michigan...he sounds decent but I don't know much. I could much more easily see him for travel, no overnight stay required - and with severe fragrance sensitivity and celiac, that is massive!!!
Posts: 81 | From Southern Ontario | Registered: Jul 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I'm thinking there are two different Dr. J's being talked about here. I see the one in MD, and he is awesome.
He doesn't do much pulsing with me--only with artemisinin bc it can be hard on the liver. If people have celiacs or are gluten sensitive, her recommends a gf diet. He does incorporate IV glutathione pushes if needed. He treats aggressively, but listens to his patients' needs and will address them accordingly.
Everyone who I've recommended him to has been very pleased with him.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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