posted
MY current lyme doctor told that my case Is progressing to quickly and he no longer can handle the case.
I am looking for a place that I can just stay in the area for a little while and do there treatment everday.
I have progressive neuro lyme and mold Maybe sponogule DR F in Nevada Shea Facility Dr J in Washington Dr H in NY Dr K in Washington state
My condition has been diagnosed as Frontal temporal dementia. I am only 24!!!!!!. I need aggressive treatment by a aggressive dr. I had done 3 months of IV rechepin with no single improvement. Thank you
Posts: 34 | From Mount Dora Fl | Registered: Feb 2014
| IP: Logged |
posted
Wishing you all the best in connecting with someone good who can help you.
No idea whether this idea will help you at all - I have a hormone brain marker, a prolactin count, that is dropping back down into a normal count soon, so I've been treating my brain.
My natural anti-inflammatories that I'm taking daily are turmeric powder and mangosteen juice, both powerful anti-inflammatories.
I get turmeric powder in bulk at the health food store and dip empty 00-size capsules into it and take one in the am and one in the evening. I feel it taking down pain fairly quickly. I don't think one can OD on it.
I drink the Mango-Xan version of mangosteen juice as it is the most tart. Sold in health food stores and online. I drink around an ounce a day.
When I first started it, it stopped all Lyme eye symptoms in 24 hours, and it stopped constipation.
Other strong natural anti-inflams I've taken include noni juice and grapeseed extract capsules.
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Emtlyme, my heart goes out to you! I will PM you with a suggestion.
Posts: 2386 | From New England | Registered: Aug 2011
| IP: Logged |
posted
I am so sorry you are going through this. I don't know of any places to recommend to you where you can stay and receive daily treatment as you wanted, but sent you a PM with a suggestion.
Here are several threads from the past about Sponaugle Wellness Institute:
Dr. H (the top LLMD) in NY is not taking new patients and has a very,very long waiting list.
I don't know if Dr. K in WA is taking new patients. You would have to call to find out.
Maybe call the Lyme Disease United Coalition at (800) 311-7518. Website is: www.lduc.org They are very knowledgeable and might know of someone or somewhere for you to go and receive treatment.
Posts: 8981 | From Illinois | Registered: May 2006
| IP: Logged |
It doesn't look like they handle Lyme but they sound good for mold. Maybe if you take care of the mold, your Lyme would be much more manageable?
I don't have personal experience with them, but I did read that Dr. N went there for her own mold treatment.
I actually contacted them and they said they could get a new patient in within a couple of weeks!
Posts: 1737 | From Virginia | Registered: Aug 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic