I'm looking for a LLMD, preferably in South Florida.
I called one (Dr. P) in my area and was given a starting price of $5000. I know I'll have to pay for good treatment but I can't come up with that.
Got a tick bite in Scotland in July and have been getting progressively more sick since September. Western Blot with Quest was reactive to 41 and 23 but I can't find a doctor who will listen.
Common story, I think, from the browsing I've done here.
Thanks to anyone who can give me a lead on a doctor.
Posts: 1 | From Fort Lauderdale, FL | Registered: Dec 2016
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Band 23 is Lyme-specific. Read Dr. C's (one of the top Lyme doctors) Western Blot Explanation:
"In my clinical experience, if a patient has symptoms suspicious for Borreliosis, and has one or more of the following bands, there is a very high probability the patient has Borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93."
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. There was a good one in Tampa, but he retired, and I don't know of any in southern FL.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If you go to www.FloridaLyme.org and look at the menu on your left you will see DOCTOR REFERRALS.
You can find Lyme treating health care professionals there, listed by state and country. It also has links to help find alternative doctors, chiropractors, specialists in Morgellons and MTHFR.
You will see some are listed as having phone or Skype follow up appointments.
The Lyme Doc site also has a listing for good labs, links to find a naturopathic doctor, acupuncture and oriental medicine doctors too.
Holistic dentists, experts in mold, and even places to avoid are listed there.
Here is a "Help For You" page that, if needed, can help with the cost of labs, provide free or reduced priced medications, grants to assist those under 25 with Lyme related costs, free cell phones and more.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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