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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD in TN or out of state dr that allows some remote/telemed "visits"

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Author Topic: LLMD in TN or out of state dr that allows some remote/telemed "visits"
LymeInTN
Junior Member
Member # 49474

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Looking for LLMD in mid TN or also willing to travel/fly to a specialist that allows some telemed/remote follow up visits.

Positive ELISA Lyme test. Negative western blot at regular lab.
Positive western blot at igenex.
I'm being treated by a local non traditional for past year but looking for someone with more experience.

I likely contracted Lyme when I visited Vermont and found engorged tick on me 4 years ago but, of course, I don't know that for sure.

Posts: 1 | From Tennessee | Registered: Dec 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out of state for their care.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TennesseeLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Tennessee/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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I sent you a name.

Welcome to LymeNet! We will help you all we can.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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If you go to www.MarylandLyme.org and look at the menu on your left you will see DOCTOR REFERRALS.

You can find Lyme treating health care professionals there, listed by state and country. It also has links to help find alternative doctors, chiropractors, specialists in Morgellons and MTHFR.

You will see some are listed as having phone or Skype follow up appointments.

The Lyme Doc site also has a listing for good labs, links to find a naturopathic doctor, acupuncture and oriental medicine doctors too.

Holistic dentists, experts in mold, and even places to avoid are listed there.

Here is a "Help For You" page that, if needed, can help with the cost of labs, provide free or reduced priced medications, grants to assist those under 25 with Lyme related costs, free cell phones and more.

https://sites.google.com/site/marylandlyme/help-for-you

Good luck!

Happy New Year!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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