You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
LLMDs are far and few between, unfortunately. You need to go where they are.
Please read several posts on Lymenet about NJ:
"There are NO good LLMD's in NJ. NJ is a wasteland of bad docs. I can tell you from years of experience, unless you go with an established doc (of which there are only a few on the east coast) you will get under-treated and continue to relapse.
PLEASE TAKE MY ADVICE. NJ is a bad place for ticks and a bad place for tick doctors."
"The LLMDs in NJ are not very good based on patients' experiences. People start with them then end up going to see other LLMDs out-of-state."
"Over the years, the folks in New Jersey have said that the best Lyme doctors are not there."
"I strongly suggest that you be willing to travel outside of New Jersey to get good treatment."
"There are Lyme doctors in the area you have named, but I don't recommend any of them. To get a good Lyme specialist, you will have to be willing to travel. At least half of all Lyme patients go out of state for their care."
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
You can go to www.VirginiaLyme.org and look at the menu on your left you will see DOCTOR REFERRALS. It has listings for all states that have Lyme docs.
There are, in my opinion, some very good Lyme docs in NJ. I've known some of them for ten or more years and they've done a world of good for many patients.
The website listed above also has links to help find alternative doctors, chiropractors, specialists in Morgellons and MTHFR.
It has a listing for good labs (including IGeneX), links to find a naturopathic doctor, acupuncturists, oriental medicine doctors, holistic dentists, experts in mold and places to avoid are listed there.
Here is a "Help For You" page in the event it is needed.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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