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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LL Dr. in Northern Virginia

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Author Topic: Seeking LL Dr. in Northern Virginia
momof10
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I suspect that my 14 year old daughter has lyme, and would like to get recommendations for a lyme-literate doctor in the Culpeper, VA area. We can travel to northern VA, or south toward Fredericksburg/Charlottesville area. Thank you!
Posts: 4 | From Jeffersonton, VA | Registered: Feb 2017  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
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I sent you a name. This doc will see patients over age 11. And, there isn't any wait to get in with him. You would be in good hands with him.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for VA & MD.

Your daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/VirginiaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Virginia/

Here is a link with a great deal of good information about Lyme and children:

https://sites.google.com/site/drjoneskids/symptoms-literature

Links about teenagers and Lyme Disease:
https://www.lymedisease.org/45/

http://www.livingwithlymedisease.org/teenagers-with-lyme-disease.html

http://www.lymefight.info/lyme-disease-general-information/children-teens-and-lyme-disease/

Here is a link for a book titled, "When Your Child Has Lyme Disease: A Parent's Survival Guide" which also might be helpful:

http://www.lymeliteratepress.com/

The top LLMD, Dr. H, has written a book titled, "Why Can't I Get Better?" and a new one, "How Can I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
babybeansmom
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quote:
Originally posted by TF:
I sent you a name. This doc will see patients over age 11. And, there isn't any wait to get in with him. You would be in good hands with him.

TF-Would you please message me with their contact info as well? I'm in Chantilly, VA but willing to travel anywhere north of Richmond if necessary.
Posts: 2 | From Northern Virginia | Registered: Mar 2017  |  IP: Logged | Report this post to a Moderator
TF
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I sent you the name.

Welcome to LymeNet! We will help you here all we can.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
momof10
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Thank you all for your responses. I've got an appointment with an LLMD** in VA a week from Monday. I'll let you know how it goes.

**Name of LLMD and the city were deleted per Lymenet rules**

[ 03-03-2017, 11:49 PM: Message edited by: Lymetoo ]

Posts: 4 | From Jeffersonton, VA | Registered: Feb 2017  |  IP: Logged | Report this post to a Moderator
TF
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momof10. I know this doctor. Do you know of anybody she has ever cured? I don't. But I know a few of her patients and how she has been treating them for at least the last 3 years.

She is not that experienced in treating lyme in my opinion. I know the doctor she trained under, etc.

You may want to get more input before laying out the big bucks to see her.

The doc I recommended to you is much better.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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Hey Momof10! Wow, lucky you!

Sorry to hear about your daughters illness. There are a number of good Lyme treating doctors in Virginia.

To find one in any state please go to...

www.VirginiaLyme.org

You will see a menu on the left that has "DOCTOR REFERRALS". That will take you to a site that has listings for your state and others.

There is also a "Help For You" Link on the menu. It has some cost reducing tips for tests, medications, insurance issues and other things.

For information on children with Lyme, including the LymeAid4Kids program from the LDA, you can go to...

www.DrJonesKids.org

Sure hope this helps. If you have any questions please feel free to ask.

Hope your daughter is feeling better soon!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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