LymeNet Flash: looking for lyme dr. in upstate NY

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » looking for lyme dr. in upstate NY - syracuse

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Topic: looking for lyme dr. in upstate NY - syracuse

bzmom7
Junior Member
Member # 49989

posted

I was recently diagnosed, and am looking for a Lyme dr. in upstate NY - Syracuse area or surrounding. Thank you.

Posts: 2 | From Syracuse, NY | Registered: Mar 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

Welcome to LymeNet! We will help you here all we can.

I sent you the name of a good doctor not too far from you. With this disease, you have to expect to travel to get care from someone who specializes in lyme disease.

You want a doctor whose entire practice or a great portion of it is lyme patients. That is how doctors develop expertise on this horrendous disease.

The doc I am recommending to you had lyme disease herself.

Let us know how it goes.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Hey up there in NY...

Welcome to LymeNet.

To find a Lyme treating professional in any state please go to...

www.MarylandLyme.org

You will see a menu on the left that has "DOCTOR REFERRALS". That will take you to a site that has listings for your state and others.

There is also a "Help For You" Link on the menu. It has some cost reducing tips for tests, medications, insurance issues and other things.

Sure hope this helps. If you have any questions please feel free to ask.

Hope you are feeling better soon!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

bzmom7
Junior Member
Member # 49989

posted

Thank you all for the recommendations. I am still researching my options, but may go to the LLMD in PA that my sister sees, since he seems to be closer to me than many of the NY drs.
Thanks again.

Posts: 2 | From Syracuse, NY | Registered: Mar 2017 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Excellent! Just glad you have choices. Take care of you!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

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