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My symptoms started October 2016. Mostly muscle twitching with some joint/tendonitis issues. Visited walk in clinic three times for basic tests, then neurologist in January for EMG/NCS to rule out ALS, then primary care doctor in February for more tests, then great functional/chiro doc Feb-April for more tests. iGenex testing in progress. Would like a LLMD contact in case I need a second opinion on symptoms and test results. Thanks!
Posts: 1 | From Fargo, ND | Registered: Apr 2017
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. None in ND.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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