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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Anyone work with Dr. C in PA?

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Author Topic: Anyone work with Dr. C in PA?
Knight33
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Hi, just wondering if anyone has worked with her. I am thinking about traveling to PA to see her and would love get some feedback about your experience. Thanks.

[ 05-02-2017, 03:26 PM: Message edited by: faithful777 ]

Posts: 121 | From Houston, TX | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
TF
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I sent you the patient reports I have on this doctor.

Plus, I sent you info on the doc I recommend you see--considered the #2 lyme doc here in the east and perhaps in the U.S.

Since you would be coming all the way from Texas, I wanted to let you know who is the best in our area.

Let me know if I can help you further. I would be happy to do so.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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PM sent for MD.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help. They would know better about PA.

Some more resources for you (including Support Groups info):
www.lymepa.org

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
B&BzMom
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She was my children's LLMD for two years. She is definitely more alternative in terms of treatment, using lots of biologicals and herbals rather than antibiotics. I had no problem with that though.

Prior to seeing her my son had seen Dr.J in CT for a year. She seemed like a good fit, as I was looking for a more comprehensive approach to my son (use of detox, herbals etc) to get him well.

My kids have Lyme, Bart, Q-fever, and Protomyxozoa. My son is autistic, and my daughter had seizures and neurological issues. Neither of my children made any tremendous gains or big breakthroughs during our time there. I did appreciate finding out about the Protomyxozoa.

She can seem rather tough, or abrasive, but I didn't mind that. You have to be committed and serious about making lifestyle and diet changes etc., to get well. We were well on that road before seeing her anyway, so for us it was more about fine tuning things.

I liked her, and her nurse very much. The receptionist not so much. We ended up leaving after she yelled at my son in the waiting room.

I know everyone has bad days, but that was unprofessional and unpleasant to say the least. My son was scared, upset and crying and I knew I would never be able to bring him back without him being fearful and anxious, so we left her practice.

My LLMD had recommended this office as a good Ped. LLMD, but I would not recommend taking young children there. Your an adult, so probably a non-issue.

Overall I respect her seriousness about treatment and liked her multi faceted approach. I felt she dragged things out a bit, holding out on prescribing Alinia in favour of herbals.

She was also not very understanding of the fact my kids could not swallow capsules or pills. She basically told me to find a way. She didn't seem to understand that my son's oral motor problems made that impossible. Occupational therapist graded his oral motor skills at the level of a 12 month old, and he is 8 years old!

Anyhow, most of the issues we had are specific to our unique situation. Be wary of receptionist, and be prepared to be super serious about anything you put on or into your body.

--------------------
B&BzMom
Misdiagnosed for 19 years.
Igenex and CDC positive July 2013: IgM 18+, 23-25-, 28-, 30+, 31+, 34+, 39++, 41++, 45-, 58-, 66-, 83-93 IND.
Babesia & Erlichia (IgeneX)
Clinical dx of Bartonella

Mom of two. One with Autism.

Posts: 14 | From St. Lawrence River Region, Ontario, Canada | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
   

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