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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in VA

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Author Topic: Seeking LLMD in VA
bbzgal
Junior Member
Member # 50292

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Seeking LLMD in VA near Lynchburg Roanoke Area.

Diagnosed and treated last year but ill again.

Hoping for insight towards proper treatment

Thank you,
bbzgal

Posts: 1 | From Virginia | Registered: May 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for VA, MD & DC.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/VirginiaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Virginia/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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This is the insight I will offer you: get to the very best lyme doctor you can possibly afford. That gives you the best chance of getting rid of this disease.

The second best lyme doc in the east just reopened her practice to new patients after nearly 3 years of closing it. So, this is a golden opportunity for you.

She is in Washington, D.C. but you only have to appear in person once every 6 months. So, you can swing that.

Let me know if you want the name and I will send it to you with lots of info (prices, patient reports on how she treats, etc.).

There are just a few doctors who know enough to get rid of this horrendous disease for someone. This is one of those few docs.

I got rid of lyme (and babesiosis and bartonella) over 12 years ago now. And, I went undiagnosed for at least 10 years.

So, don't give up hope. The doc is the key.

Nobody top notch in your area.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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