12 years ago I started Lyme treatment. I am feeling very badly now. Have been to top Lyme doctors already.
Looking forward to your suggestions.
Posts: 11 | From Goshen, CT | Registered: Aug 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
The number 2 lyme doctor in the eastern U.S. is in Washington, D.C. and is currently taking new patients.
This is a great opportunity for you. This doc has been closed to new patients for the last 2 1/2 years.
You would only have to appear in person once every 6 months, so that is not much traveling at all. Let me know if you want the name. If I were you, I would go to her if at all possible.
There is a great lyme doc in Connecticut, but the wait to get in is 1 year. The D.C. doc should be able to see you in about 2 months.
I checked your previous posts and I see the docs you saw in the past. Some aren't so good in my opinion.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Welcome back to Lymenet! PM sent for CT & MD.
So sorry you are still having health problems.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
LLMDs are far and few between, unfortunately. You need to go where they are. At least half of all Lyme patients travel out-of-state to get proper care.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Janesir,
So sorry to hear about your situation. Offering my opinion here, want you to know the following is not true.
Quote- "The number 2 lyme doctor in the eastern U.S. is in Washington, D.C. and is currently taking new patients."
With all due respect, please remember everyone has an opinion, and the one above isn't shared by me or anyone I know.
That said...
I am sharing below a large list of Lyme treating health care professionals names and contact info for you to consider. Narrowing down your choices by contacting their offices and reading their websites in advance may help pick someone more in line with your needs.
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state). You may want to review options in states near-by also.
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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