posted
I live in both cities but my actual insurance is in Pittsburgh. I know many don't take insurance but im looking for someone that isn't going to try to con me - someone that has a solid track record - especially with crazy neurological issues. Any information will be greatly appreciated. Thank you in advance.
Posts: 4 | From Pianist | Registered: Feb 2010
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posted
Welcome to Lymenet! PM sent for PA, OH & MD.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
LLMDs are far and few between, unfortunately, so you need to go where they are. At least half of all Lyme patients travel out-of-state to get proper care.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I sent you the name of the doc I recommend.
I had undiagnosed lyme disease (and babesiosis and bartonella) for at least 10 years before a doctor thought to test me for lyme.
Still, I got rid of it. It takes a while to get through the lyme doctor learning curve. I wasted 2 years treating with doctors who didn't know enough to get me well.
Then, I studied the Burrascano Lyme Treatment Guidelines and contacted lyme support groups asking for a doc who did everything Burrascano said in his Guidelines. Bingo!
Once I got to a doc who followed Burrascano, I was symptom free in 8 months and finished with treatment in 13 months.
That was 12 years ago now, and I am still symptom free with a normal brain, enjoying my life. I have the same life I had before lyme disease. Praise God!
Then, I sent 5 of my friends and neighbors to Burrascano type docs and they all got well also.
So, I only recommend doctors who follow the Burrascano protocol. It is here:
I strongly suggest that you read and STUDY it. There is no substitute for an educated patient when it comes to this disease. This document will give you your education.
Then, you will understand more of what the lyme specialist is telling you. And, you will be able to evaluate the treatment any lyme doctor gives you and be able to tell whether it is good or bad.
Here are a few points from Dr. B's guidelines:
You must attack both the regular and cyst (or other) form of lyme simultaneously--requires at least 2 different antibiotics taken together to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections the patient has(including babesiosis, bartonella, ehrlichia, mycoplasma, etc.) or the patient will not get well.
You must use Igenex for most of these tests--they are a tick-borne disease speciality lab in Calif.
You must use very high doses of antibiotics to kill the diseases (batericidal doses).
You must give the patient supplements, probiotics, herbs such as artimesinin if babesiosis is suspected, and require adherence to rules such as low carb diet, no alcohol, no smoking, rest, and exercise as the patient is able to do it.
(To boost the immune system and prevent relapse, the exercise must be one continuous hour of weightlifting every OTHER day--a full body workout each time, light weights, many repetitions.)
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
These are just a few of the important points you will see in the guidelines. If possible, you want a doc who does EVERYTHING Burrascano says to do. He treated lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. He was the most successful lyme doctor on the planet. They came from every country in the world to be treated by him.
I stick around LymeNet just to point people to the Burrascano Guidelines and the few doctors who follow it.
Welcome back to LymeNet. We will help you here all we can. Wish you all the best.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Mr. Kenny,
First, Dr. B's guidelines are a GUIDE, not the bible. They are somewhat outdated and in fact they do not say you must use IGexex tests, or that you MUST treat with high doses of antibiotics for every one. (Some will die doing that.) Just don't want you to go demanding something for yourself from any doctor that may prove to be harmful.
That said...
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state). You may want to review options in states near-by also.
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
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