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I am a resident of New Brunswick Canada and am looking to find a great LLMD in the NorthEast. We are willing and able to travel!
Our 24 year old daughter has multiple unexplained symptoms that suggest Lyme disease. She would be high risk with respect to tick contact.
She has undergone a battery of diagnostic tests including Ct scan, MRI, ECG,EKG, echo, ultrasound, telemetry and multiple blood tests including one for Lyme that came back negative.
We think that our best option is heading to the USA where there appears to be more Lyme literate doctors as well as treatment protocols than available in Canada.
Any assistance in helping us find the best doctor would be greatly appreciated.
Thank you so much!
Posts: 3 | From Fredericton, New Brunswick, Canada | Registered: May 2017
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posted
Welcome to Lymenet! PM sent for upstate NY, MD & DC.
Your daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
*Note: Dr. Murakami was the top LLMD in Canada before he retired.
Some additional resources for you to study:
Read the following books:
"Why Can't I Get Better?" and the new one, "How Can I Get Better?" written by Dr. H, the top Lyme-literate doctor. They are an excellent source of information.
"Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
"Ending Denial (Updated in 2013): The Lyme Disease Epidemic - a Canadian Public Health Disaster" by Helkie Ferrie.
The description written about this book on Amazon is as follows:
"This book includes tips and tricks for getting treatment and testing if you live in Canada. Lyme is becoming a public health crisis in Canada. An estimated 20,000 Canadians become sick with Lyme every year, but patients are not allowed access to internationally recognized tests and are denied successful treatments.
The disease is readily treatable with conventional antibiotics, even in its chronic form. A call for action from patients, doctors, researchers, and politicians, this book contains life-saving resources with over 450 pages. It also includes access information to reliable tests for Lyme Disease not available in Canada, as well as effective treatment guidelines."
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Thank you so much for your suggestions. We are not quite sure what decisions we will make as who to see first but this certainly makes our search easier!!
Posts: 3 | From Fredericton, New Brunswick, Canada | Registered: May 2017
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You're in good hands with TF and hopingandpraying's recommendations, they got me to a great doctor (Dr S) a month ago and this is the first positive outcome for me in 10 months. I'm from Quebec and know what you've been through here in Canada, it's a shameful situation.
I would give a five-star rating to Dr S for her knowledge, experience, and amazingly compassionate nature. She is by far your best bet.
Let me know if you need help with arrangements, how to travel, where to stay, and how to obtain meds. I did all this between April 24-26 and have plenty of useful advice.
Welcome to Lymenet!
Jory
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
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Thanks so much Jory. It is so nice to hear that things are finally taking a positive swing for you....yay!!
Posts: 3 | From Fredericton, New Brunswick, Canada | Registered: May 2017
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Your daughter will also take that same positive swing, it's going to happen! I remember how excited TF was for me once I got my appointment (3/28/17), I share this same excitement for you now.
This is my story, among other threads here on Lymenet:
Tincup
Honored Contributor (10K+ posts)
Member # 5829
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Sandra Lee,
Welcome to Lyme Net.
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in the USA (all states listed).
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
Hope your daughter is feeling better soon! Good luck!
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![[Smile]](smile.gif)
I remember how excited TF was for me once I got my appointment (3/28/17), I share this same excitement for you now.![[group hug]](graemlins/grouphug.gif)
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