I am from Quebec (near Burlington) and am looking for a doctor for a real assessment for Lyme disease. My partner, who had a very high score on the Dr. H questionnaire, was diagnosed with Amyotrophic Lateral Sclerosis with a death announced in 5 years. Microbiolist and neurologist do not want, apart from an unreliable blood test in Quebec, investigate more thoroughly for the Lyme !! Could you tell me if you know an MD who could receive the man of my life?
Welcome to Lymenet. I'm sorry to hear about your partner's diagnosis. I'm sure someone will get a list of doctors to you shortly. I edited your post to remove the doctor's name. We do not allow names to be mentioned in posts.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Welcome to Lymenet! PM sent for upstate NY, MD & DC.
Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! LLMDs are far and few between, so he needs to go where they are.
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.
Here is some more info for Canada you should have:
I don't know of any LLMDs in Canada, as I was told the climate there is very bad for Lyme treatment.
*Note: Dr. Murakami was the top LLMD in Canada before he retired.
Some additional resources for you to study:
Read the following books:
"Why Can't I Get Better?" and the new one, "How Can I Get Better?" written by Dr. H, the top Lyme-literate doctor. They are an excellent source of information.
"Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
"Ending Denial (Updated in 2013): The Lyme Disease Epidemic - a Canadian Public Health Disaster" by Helkie Ferrie.
The description written about this book on Amazon is as follows:
"This book includes tips and tricks for getting treatment and testing if you live in Canada. Lyme is becoming a public health crisis in Canada. An estimated 20,000 Canadians become sick with Lyme every year, but patients are not allowed access to internationally recognized tests and are denied successful treatments.
The disease is readily treatable with conventional antibiotics, even in its chronic form. A call for action from patients, doctors, researchers, and politicians, this book contains life-saving resources with over 450 pages. It also includes access information to reliable tests for Lyme Disease not available in Canada, as well as effective treatment guidelines."
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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Sending you a private message -
Posts: 13116 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
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Nadia,
So sorry to hear about the troubles you all are having. Hopefully you'll be in a better place real soon.
If you go to www.VirginiaLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's (all states).
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
Hope so much he is feeling better soon! Good luck!
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