LymeNet Flash: Searching for LLMD in VT

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Searching for LLMD in VT

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Topic: Searching for LLMD in VT

derbyman
Junior Member
Member # 50573

posted

Thank you in advance for your help, it's greatly appreciated.

I am looking for a Lyme Literate Medical Doctor in Vermont. It is a small state so if others know doctors they trust in the surrounding area I can work to make the drive.

Ideally a doctor specializing in headaches, neurology, is what I am searching for.

My main symptom is a chronic daily headache. It is known as New Daily Persistent Headache.

Thank you so much for reading my post. I know life is not easy when you're working against the weight of feeling unwell.

--------------------
-- Chronic Daily Headache [Frown]

Posts: 2 | From Williston, VT | Registered: Jun 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for NH & upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

I don't know of any LLMDs or LL Neurologists in VT. Contact the VT Lyme Support Groups I have listed below - they would know better about VT. I only know of one LL Neurologist in CT and another in NY.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in to sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/VermontLyme/info

Maybe they can help.

Some more resources (including Support Groups info):

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Vermont/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

[ 06-23-2017, 11:52 AM: Message edited by: hopingandpraying ]

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Another option so you can expand your search if needed...

You can go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states.

Here is a list of tick borne diseases with how to diagnose (testing), a list of symptoms for each disease and treatment information.

Might want to check out Babesia. Just suggesting it because you mentioned those headaches.

https://sites.google.com/site/marylandlyme/tick-borne-diseases

Hope that helps! Good luck to you!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

derbyman
Junior Member
Member # 50573

posted

Thank you HopingAndPraying and Tincup for the advice I will be sure to follow up on it in my search for a doctor.

In the meantime I would like to know if I even have Lyme beyond my own suspicions.

Since it sounds like there are no LLMDs you know of in the area would it be a good idea to go to an Osteopath such as http://preventivemedicinevt.com/ who can give me the Igenex test?

I have heard there are false negatives on that test but there are no false positives. Is there anything special I should do to ensure I don't get a false negative/get the most accurate test possible?

--------------------
-- Chronic Daily Headache [Frown]

Posts: 2 | From Williston, VT | Registered: Jun 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

I am sending you the name of a good LL Naturopathic Doctor in VT. Maybe she can test you.

Lyme Disease is a clinical diagnosis made by a Lyme-literate doctor (LLMD) based on medical history, symptoms, test results, etc. Write a new post in "Medical Questions" to ask about your specific concerns. People will gladly offer advice to help you.

[ 06-23-2017, 12:34 PM: Message edited by: hopingandpraying ]

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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