posted
Please send me info on dr. In Colorado. I have Medicaid.
I'm a 43 year old who suspects I have Morgellons Dosease and research has brought me here. Along with symptoms simulator to Morgellons- I have suffered a lot of health tragedies since the onset of these symptoms. I've been diagnosed with breast cancer leukemia and chronic kidney disease. All of my health problems began Fter these mysterious symptoms.
Tired of being called crazy while my health deteriorates fast. five years ago I was healthy and happy. Now I'm far from either of those things.
Any help or resources are greatly appreciated.
Posts: 1 | From DENVER co us | Registered: Jul 2017
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out of state for their care.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
I was told doctors in CO do not treat aggressively enough, because CO is extremely tough on any doctor who does. The medical board is relentless on them.
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Scroll down for financial help, etc., available from several sources.
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%. View on www.lymetap.com
Read the books written by the top LLMD, Dr.H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
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