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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in PA

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Author Topic: Seeking LLMD in PA
ProfMel
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Member # 50780

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I am 67 years old and live in Northwestern Pennsylvania.

My Lyme symptoms began in October 2015. I was diagnosed with Lyme in May 2016. I have been treated by an Infectious Disease doctor using conventional methods. I am greatly improved, but am experiencing a serious flareup this summer.

I need to find an LLMD reasonably close to home. Please help.

[ 08-23-2017, 01:40 PM: Message edited by: ProfMel ]

Posts: 3 | From Clarion, PA | Registered: Aug 2017  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Welcome to LymeNet Prof Mel!

Sorry you are having problems with the Lyme again.

If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states that have them.

Additionally, here are some ways to locate a variety of alternative health care professionals too. Hope it helps!

https://sites.google.com/site/lymedoctors/alternative

Good luck to you! Feel better soon!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for PA & OH.

I know you are new to Lymenet, but you should write "in PA' in your title so people will know specifically where you are looking. To do this click the pencil/paper icon, make your changes, then click "Edit Post".

Stay away from Infectious Disease Doctors (IDSA). They believe one dose of antibiotics is enough and don't believe in chronic Lyme. Patients end up getting sicker.

Here is a link for you to read about "Two Standards of Care":

http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-two-standards-of-care-revisited.html

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients go out-of-state for care.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help. They would know better about PA.

Some more resources for you (including Support Groups info):
www.lymepa.org [*Note: they are very knowledgeable]

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

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