posted
Needed ASAP llmd preferably one who is familiar with optic neuritis. Please help losing sight!
Posts: 41 | From Akron, Ohio | Registered: Jan 2010
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
You can message them for a referral for a LLMD. They will also be able to tell you about treatment protocols and successes of different LLMD's. You must research each Doctor.
It is so important to find the very best doctor. I sent you a pm.
Posts: 2977 | From Florida | Registered: Nov 2016
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
We have better lyme doctors here in the east than what you will find in Ohio.
There is one with no wait in Maryland, ouside of Washington, D.C.
There is a top notch one in D.C. Wait for new patient is at least 7 months.
These docs will do telephone appointments so you only have to travel every 3 months or every 6 months to appear in person at the office.
Let me know if you want the info on these docs.
I know a number of people in Ohio who are coming here after trying Ohio docs, and they are very happy they did.
We just have so much more lyme here. That is why our doctors have more expertise.
You could email the docs I recommend to find out how much they know about optic neuritis. I believe it is a fairly common lyme symptom. I know a few people who have temporarily lost their vision due to lyme.
So, good lyme treatment should solve the problem. It can be difficult to find good lyme treatment in Ohio, based on those whom I have talked to. I don't have anyone there I can recommend.
Posts: 9931 | From Maryland | Registered: Dec 2007
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out-of-state for proper care.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Lyme can affect the eyes. You would probably need to see a Lyme-literate Ophthalmologist. Check with the OH Lyme Support Groups listed below - they might know of someone.
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Read the books written by the top LLMD, Dr. H, titled,"Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
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