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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for LLMD or LLND in Minneapolis area

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Author Topic: Looking for LLMD or LLND in Minneapolis area
Miranda07
Junior Member
Member # 51738

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Recently diagnosed but I believe I have had lyme for 6+ years. Looking for a specialist in the Minneapolis area. Thank you!
Posts: 1 | From Minneapolis | Registered: Nov 2018  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet Miranda07

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

Learn why LLMD's don't participate with insurances here;

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/25539?

Watch "Under Our Skin", a documentary about the struggles Lyme patients face while trying to get diagnosised and treated ;

http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Start a folder to place everything regarding your health. Blood tests and urine tests results, all medical procedures and all medical professionals seen, doctors notes, list of your symptoms and all meds taken. Bring this to your 1st LLMD visit. This can sometimes save you money from unnessary tests. Lyme is expensive to treat so get your finances in order.

Please utilize Lyment's 'search' function for questions you may have. Or just post your question in the public forum and one of Lyment's many dedicated volunteers will respond. Wishing you healing thoughts on your wellness journey.

I will send you a private message.

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Also, you can connect with your area's Lyme support group to get feedback on your area's LLMD's treatments and practices.

https://rawlsmd.com/lyme-support

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for MN.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in earlier by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MinnesotaLyme/info

Maybe they can help.

Some more resources for you:
http://whatislyme.com/lyme-in-minnesota/

http://mnlyme.com

http://www.lymenet.org/SupportGroups/UnitedStates/Minnesota/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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