I have had Lyme myself for over 10 years and live in Virginia. My cousin is now ill with Lyme and lives in Canada and can't find a physician to treat her. She was actually diagnosed with Lyme in Canada but was told they will not treat her through their national health care system.
If anyone knows a doctor in Upstate New York or in Ontario please let me know. She is now too ill to walk and needs help in the worst way. She was too confused about how to leave her own message here so I am trying to help.
Her symptoms are loss of motor skills, confusion, agitation, exhaustion, and inability to sleep.
Thank You!
Posts: 63 | From dc | Registered: Sep 2010
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Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
Your cousin needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! LLMDs are far and few between, so she needs to go where they are.
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.
Here is some more info for Canada you should have:
I don't know of any LLMDs in Canada, as I was told the climate there is very bad for Lyme treatment.
*Note: Dr. Murakami was the top LLMD in Canada before he retired.
Some additional resources for you to study:
Read the following books:
"Why Can't I Get Better?" and "How Can I Get Better?" written by Dr. H, the top Lyme-literate doctor. They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin 2: Emergence" DVDs. Check your local library or buy them used online.
"Ending Denial (Updated in 2013): The Lyme Disease Epidemic - a Canadian Public Health Disaster" by Helkie Ferrie.
The description written about this book on Amazon is as follows:
"This book includes tips and tricks for getting treatment and testing if you live in Canada. Lyme is becoming a public health crisis in Canada. An estimated 20,000 Canadians become sick with Lyme every year, but patients are not allowed access to internationally recognized tests and are denied successful treatments.
The disease is readily treatable with conventional antibiotics, even in its chronic form. A call for action from patients, doctors, researchers, and politicians, this book contains life-saving resources with over 450 pages. It also includes access information to reliable tests for Lyme Disease not available in Canada, as well as effective treatment guidelines."
Posts: 8981 | From Illinois | Registered: May 2006
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Here are some links to Lyme Support groups located in Ontario. Connect with these groups to find info on your area's LLND's;
LLND'S, I believe(?) are not legally able to prescribe antibiotics unless they work with a LLMD in Ontario. Keep this in mind when researching their treatment protocols.
I will send you a private message on LLND's in Ontario and NY state LLMD'S.
Posts: 2977 | From Florida | Registered: Nov 2016
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