posted
I am trying to find a doctor in Florida or the surrounding states (GA, TN, NC..) that can help me with a diagnosis. I have classic symptoms and spent the last year and a half completing/hiking the Appalachian Trail from Ga to Maine. No bullseye but completely hit all the signs. Been dealing with it for months and months and only one doc agreed to do one Lyme test that came back negative -many of my friends on the trail have wound up with Lyme but did not have the rash and also came back negative on a test only to test positive later . Thanks for any help
Posts: 2 | From florida | Registered: Sep 2019
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
You need to be seen by a Lyme Literate Medical Doctor (LLMD). These are specialists in Tick and Vector Borne illnesses. Most LLMD's don't participate with insurances. Here's why;
These are both simple e-mail formats that you fill out and send. You will then get an e-mail with LLMD providers. It is up to you to research each doctor. To do this, you can google for patient reviews or join your area's Lyme support group. Support group members have first-hand knowledge of LLMD'S near you. Here is a list of Florida Lyme support groups;
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the 'Edit Post" tab, make your changes, then click "Edit Post" at the bottom. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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