posted
I and my son were both diagnosed with Lyme Disease. I live in Washington State and my son is attending school at Indiana State. I am looking for Lyme specialists in both the Seattle and Indianapolis/Bloomington Areas.
-------------------- Sue Englert Posts: 1 | From Seattle Wa | Registered: Sep 2019
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Welcome to Lymenet SEnglert
You and your son must be evaluated by a Lyme Litterate Medical Doctor (LLMD). Regular mainstream doctors are not trained in Tick and Vector Borne Infections.
Your initial visit is the most expensive and the lengthiest so you should get your finances in order. Check to see if any LLMD'S in your area offer Skype appointments. That way your son could maybe see your LLMD and Skype while away at college.
Also any LLMD'S referred to you should be researched before you commit to their practice. To do this Google for patient review or join your area's support groups. Your area's support groups have first-hand knowledge with their experiences with your local LLMD'S. Here's both of your's support groups;
Also be sure to utilize Lymenet's 'search' engine for our members experiences with treatments, medication protocol's, supplements, the latest research and for 24 hour compassionate support.
I will send you a private message. Good luck to you both.
Posts: 2977 | From Florida | Registered: Nov 2016
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Also having 2 people recieving Lyme treatments at the same time will cause great financial hardship, you might look into applying for grant monies for your son.
You & your son both need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You both need to go where they are. At least half of all Lyme patients travel out-of-state for proper care.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
There was a good LLMD in Seattle, but he had to close his practice due to the hostile medical environment towards physicians treating Lyme patients.
I would recommend you write a new post in "Seeking a Doctor" once you get a name/names and ask for feedback. Title it "Need Feedback for Dr. _ in _ " (last name initial only allowed per Lymenet rules, no first names - write name of state, no towns/cities allowed).
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.
Btw - I know you are new to Lymenet, but you should not use your real name, because this is a public forum with all sorts of people on it. Read this link about it:
To remove your name from the signature line, click on "Edit Profile" under Lymenet Flash in the top middle section of the Lymenet page.
Click on "Edit Profile" on the left-hand side, scroll down to "Profile Fields" then down to "Signature". Make your changes, then click "Update Profile".
You would have to contact one of the moderators to ask how to change your username.
Posts: 8981 | From Illinois | Registered: May 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Private message sent for Indy.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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