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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » WISCONSIN OR ILLINOIS doctor

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Author Topic: WISCONSIN OR ILLINOIS doctor
DesperateMom79
Junior Member
Member # 52058

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Hello,
I am looking for an LLMD to treat my seven-year-old son who has neuro and mental health symptoms.
Thank you.

Posts: 1 | From Iowa | Registered: Dec 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet DesperateMom79

So sorry about the health of your son.
You must get him to a ILADS (International Lyme and Associated Diseases Society) Lyme Literate Medical Doctor. (LLMD)
Mainstream MD's have no clue on how to diagnosis or treat Tick Borne Infections.

You can request a LLMD through Lymedisease.org here;
https://www.lymedisease.org/members/lyme-disease-doctors/

You can request a LLMD through ILADS here;
https://www.ilads.org/patient-care/provider-search/

Many LLMD'S don't participle with insurances, here's why;
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/25539?

You must become your son's healthcare advocate. Research everything about Lyme Disease and co-infections. Utilize Lymenet's 'search' engine for info on testing, diagnosises, treatment protocol's, diet, lifestyle changes, reactions to meds, the latest up-date-research, ect and Lymenet member's first-hand experiences.

Many LLMD'S have a wait list and are expensive. Get your finances in order, your 1st intial visit is the costliest and the longest.

Important;
You must research each doctor referal. To do this, Google for patient reviews or join your area's Lyme support group. Support group members have personal information on how each doctor treats and their Sucess rates. You can find your support groups here;
https://rawlsmd.com/lyme-support

Healing prayers to you and your family.
I will send you a private message for IL and WIS.

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for WI & IN.

Lyme can cause psychological problems as well as physical ones. Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between, so your son needs to go where they are. At least half of all Lyme patients go out of state to receive proper treatment. We have a poor physician base here in IL.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in earlier by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/IllinoisLyme/info

Maybe they can help.

Some more resources for you:
http://whatislyme.com/lyme-in-illinois/

http://whatislyme.com/lyme-in-wisconsin/

http://www.lymenet.org/SupportGroups/UnitedStates/Illinois/

http://www.lymenet.org/SupportGroups/UnitedStates/Wisconsin/

Here are some links about Lyme and children with very good information:

http://www.childrenslymenetwork.org/

https://sites.google.com/site/drjoneskids/symptoms-literature

https://sites.google.com/site/drjoneskids/home

Here is a link for a book titled, "When Your Child Has Lyme Disease: A Parent's Survival Guide" which also might be helpful:

http://www.lymeliteratepress.com/

Also read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy it online.

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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