posted
I read in another thread where the group would like to know a little about each of us. So, I have tried to start a new thread and I hope I am doing this right, so everyone can read it. I am trying to follow Betty's tips.
I was born and raised in NC. I have always been a very tired person and seemed to get sinus infections/bronchitis/ear infections constantly. Still, I was very athletic by playing volleyball, softball, and I was on the swim team.
The fatigue was the first symptom I noticed, but I started having severe headaches when I was 12. Life was pretty miserable because my family didn't know what to do with me. I literally had a headache until I threw up, sometimes they would go on for days. They hated going on a trip because of me, I was bound to get a headache and throw up all over the place and ruin everything.
My family never got me any treatment, we didn't have much money, much less insurance. I didn't get treatment until I was about 18, and I married a military man. They sent me to a nuero who told me that I had migraines, but none of the migraine medicine worked. I still slept alot. I remember my husband getting upset with me because I couldn't go out with him and his friends. That is when I began to realize that I was sleeping more than the normal person.
I can't even count the doctors. I have seen doctors in NC, Indiana, and now Florida. I tell them I am tired and I am in pain, and the antidepressent list comes out. I tell them all of the ones I have tried, and I explain how sick I get when I stop taking them because withdrawls are hard on me.
I am in Florida now. New husband. And after getting really MAD at my husband and my mother who told me "this is the way you are, you are going to have to get used to it" I found a chronic fatigue doctor. I drove 6 hours away by myself on my first trip. That is when my husband realized how bad I felt.
He now sticks close to me and comes with me to do the doctors. I am so glad he finally believes that I just can't push myself anymore. But, by going to the FFC Dr. (Fibromyalgia and Fatigue Center) and following 6 months of their treatment (out of pocket) they finally tested me for Lyme.
When the Health Dept. called me, they did not say I had Lyme, they said I had Ehricholosis. I didn't even know what it was, but I started crying on the phone. I was just glad I finally had a name for it. And, then I said, what the HE!! is Ehrichilosis??
So, I found this out two months ago. I requested my labs and I have Lyme IGM and IGG and CMV and HHV-6. I am finding a lot of help on this website. And, to all those who contribute thank you so much!!!
Now, I know what I have and I can at least try to find treatment that is appropriate, which gives me hope. I am going to try to find a good LLMD, because there is so much in life that I want to do. I have a beautiful 5 year old daughter that I want to chase around!! (And, I am scared she may have Lyme too...)
CHEERS!!
Posts: 893 | From Florida | Registered: Dec 2008
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Congrats on your little one and for having a kind and supportative husband.
It has been a long journey for you. I call it the "Lyme Walk" from one doctor to another, one diagnosis to another, unhelpful meds (sometimes even harmful) and all it boils down to is a simple blood test.
Or a simple question "could you have been bitten by a tick?" Or maybe finally someone looks at all the symptoms rather than one or two and finally sees the light.
I wonder what's going on. I don't think the Health Dept. is supposed to contact the patient. I have had the State of CA health dept. call us on the phone wanting to talk to my daughter.
I asked "aren't you supposed to discuss this with her doctor instead?" She answered "yes". But they keep calling. Thing is - do I really know who I'm talking to?
There are laws in place to protect us and keep our health private. They want to discuss this on the phone? Doesn't make sense.
I hope someone will come along and recommend a LLMD in Florida for you.
I know Lymenet was down yesterday - this is my second attempt to post to you.
Good Luck and Best Wishes -p
Posts: 641 | From So. CA | Registered: May 2008
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bettyg
Unregistered
posted
welcome needs lots of help! my pc's been down 3 days; so i'm behind helping folks!
check your profile for florida names i'm sending you and louisiana/s. missouri ******************************
thanks for wonderful detailed post; i had no problems reading it, and i THANK YOU!!
hhv6, TIMACA, member, is expert on that; her info is in my newbie package too!
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posted
If you want anyone to read your story, it would be best to put it in General Support. Few come here to read anything. It's just for helping people find drs and only a few of us help out here.
Thanks for posting your story! Can you cut and paste!?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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