posted
Hi all. This may sound like a repeat but I haven't been around to know what went on here with cave but she asked me to post her e-mail if anyone wants to contact her. She cannot access pm's here so you can e-mail her here...
Sorry for the post in medical but since it's usually medical she's posting about I figured you'd find it here.
Posts: 111 | From Pa | Registered: Oct 2007
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Oh no.......has Cave been banned? What is going on here?
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
no-not banned just cant recieve PMs for some time now....wheres the glitch doctor?
-------------------- BJK
Nothing I write here is medical advice...I'm just another lymie sharing how this disease has affected me personally Posts: 175 | From Central Maine | Registered: Sep 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Sorry folks....She e-mailed me and said "banned".
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Yep- she and Fin are both banned. That's why she asked me to post her e-mail. Sorry for the bad news.
Posts: 111 | From Pa | Registered: Oct 2007
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posted
OK you two.....you forced me to look the word up Sheesh
I would hope that if I was "relapsing" as is reported, that people would only speak kindly of me while this is happening, or not wait until I'm banned to discuss my predicament.
LymeNet is supposed to be about support.
In the past year Cavey's brought some very valid points to the forefront, I tend to agree with a lot of them.
I'm still here, I believe this site is the place to go for help.....even though the help sometimes is skewed in the incorrect direction.
Anyone who frequents the "Seeking" Forum can attest to how many people each and every day look for help from LymeNet. I've already found my help in LymeNet past, I hope they find it in LymeNet present, or future.
[ 14. March 2008, 02:25 PM: Message edited by: Meg ]
posted
I am sorry she was banned. She was doing a necessary job, because lymenet does go too far into alternative med proselytizing. This is why it is called lymenut sometimes, by critics.
People have right to try whatever they want to try in their own medical treatment and to report the results. But some have taken it too far, promoting things that have zero science and are in the realm of wishful thinking. This does not help newbies. So balance is necessary, and some people have to provide it, if the moderators don't. It is a thankless job.
It is perfectly understandable that some people will try things that science has not approved. Look at the mixed motives in medicine and pharma, the influence of profits on motives, the real situation that some/many ailments do not have a cure, or even a known cause or good treatment. Add in insurance troubles, and you have produced a world in which people feel like they are on their own. So, they try alternative treatments. But since these efforts are not being tried in an organized way, there is no unbiased collection of results, so what we get is testimonials. Maybe that is enough for some people to decide on their own treatments, but it is not a rational way to organize medicine.
I hope Cave will be allowed to come back.
Posts: 8430 | From Not available | Registered: Oct 2000
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Some have PM'd me that Cave is relapsing big-time, this the difference. I hope not- but i have seen a big change over the past year, from one of the most balanced, objective, kind, and helpful posters here, to someone who more often seems vituperative and bitter.
This reminds me of the day our PCP turned to my daughter, after a year of her illness and said, "you need to go back to your psychiatrist"
Let's not invalidate what someone says because they are ill. And, to presume she is relapsing? I haven't heard or seen evidence of that. But, I believe we will be fighting this disease off and on the rest of our lives.
I can go through the medical secion now, after two years of membership, and not find two things that apply. We have tried some of the supplements and alternatives, but, like lou said, it's becoming a place to pitch sales, in a way that seems valid.
We need to rely on some wise souls who can objectively see things those who are ill cannot.
Losing Cave is a big loss to this board. I'm afraid without that balance, it will quickly run aground.
I love this place.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Just a little note from my perspective. I came here desperate and willing to try anything. I find nothing wrong with anyone's quest for wellness. There should be some limits, however, to what is presented as factual information. Dr. B is one of the first names I heard here so
I googled and got his guidelines for wellness. I believe his guidelines are what the site initially promoted for treatment. I realize, however, many folks cannot tolerate abx. This, in turn, sends everyone searching for alternative methods. Fine for them.
But as more and more folks go that way, the abx tx gets put on the back burner. It seems like I have read more and more alt. tx being promoted(or sold) and less emphasis on conventional meds. This caused a great divide . I've seen both sides get a little outspoken but I only see Cave banned.
I'm not calling for a banning of everyone else just maybe tolerance to be doled out evenly. I know most of you don't know me but I'm a born pacifist and I hate dissention. Cave, however, has put info out there that I have found invaluable. I count her a friend and if she is a bit opinionated it's no different than others who have been just as opinionated in the other
direction. We all need a little tougher skin and realize we are on the SAME side-against this God-awful disease.
Posts: 111 | From Pa | Registered: Oct 2007
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posted
BRING CAVE BACK!!!!!!!!!!!!!!!!!!!!!!!
Posts: 661 | From NY | Registered: May 2003
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
I have not picked up on what Cave did. I guess it flew over my head. And I do read posts every day. Kinda sad that I sit here every day, but it is nurishment.
I was on a chat group for lyme once that allowed flaming, and although the moderator was the most brilliant lyme informed person I have yet to meet, the flaming she allowed caused huge amounts of misery.
I have noticed that when some people post here, they do so while putting up a "shield" because they fear the beating that they think is going to come. This is not good either.
I am really so sorry about all of this.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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posted
I'm new around here, but I couldn't help commenting.
It's obvious to me that Cave is an important part of this community.
...Anybody listening?
carly
Posts: 797 | From New York | Registered: Feb 2008
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
I am dumb as a doornail ,,,I dont KNOW why they were banned,,,was it Fin24 post a few lines down about health providers having suspect degrees of ND's ,,,trying to bamboozle inocent victims??
"IF" thats the offensive thread,,,something is way wrong here!! Both cave and fin were talkng ever so nicely THERE and agreeing on the content to boot!!!
I dont like backstabbing and nit picking either,,,hope it wasnt happening elsewhere. If you wouldnt say those things to someones face,,,why say them HERE!!??
I think we NEED a reason or at least an offense,,,going past CLEAR boundaries to be banned,,,thats what I think!! Anybody have the real resons???sharing time???
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Cobweb
Unregistered
posted
She drank too much Vitameatavegamin.
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What happened to my new friend Fin & Cave? Who will fill the void -- all the newbies to save? From all the alterna-lymies posting fluff Like taking herbs & detoxing kinds of stuff Now who will tell us only "Science Rules" And tell us they don't gladly suffer fools? This ain't the way this place as a rule works I'm having a daily sarcasm withdrawal herx!! Posts: 590 | From Canada | Registered: Oct 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Looking:
excuse me for being jealous I didn't write that!
mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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LymeNet has rules, which are presented to every user when they register. These rules, also known as Terms and Conditions or Terms of Use are click-able at the bottom of every web page on LymeNet and here: http://www.lymenet.org/terms.shtml
We, at LymeNet, take the banning of any user (except for obvious Internet trolls and Internet Forum Spammers who post porn or advertisements for drugs) very seriously.
No user has ever been banned without repeated requests that they stop authoring posts that are offensive or violate the LymeNet Flash rules. I don't call them warnings ... just requests "please stop", "don't put me in a position where I have no choice but to ban you".
In some isolated cases, when all other options have been exhausted, the offensive user is banned.
There have been instances where a user claimed they had been banned with no warning ... that may very well be true for the final time that they again violated the LymeNet Flash rules but they fail to mention that there were repeated requests over a period of time asking that they stop violating the LymeNet Flash rules.
I'm not ever going to reveal the details involving the banning of a specific user as there's simply no reason to assault someone's character.
Again, we at LymeNet take the banning of a user very seriously but there are times, in spite of all our efforts, when there are no other alternatives.
I can only hope that I never have to click on "ban" ... I find it very upsetting.
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I've been thinking about this incident. There have been times in the past when longterm members were banned and then allowed back. It was usally after the request by many members, I'm not sure wether the requests made a difference or not.
At least some times, the bannings happened after things were said that were inappropriate. But it was still a valuable member. And when that person comes back, I think they are more careful.
Perhaps that could be considered this time? I trust Lou B, and trust that there were warnings and that rules were broken if he says so. I also understand that the moderators can't pick and choose who is allowed to follow the rules.
I do believe if rules were broken in this case, they were inadvertent by people trying to help others.
But maybe sinee these are important members to the community they could be given a second chance now that they have a better understanding of the rules.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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The term "disagree without being disagreeable" comes to mind...this seem to apply here, simply from reading the posts of these two former lymenetters.
I enjoyed their posts and used their information on a regular basis and will miss them.
I do not envy you your difficult job of having to judge when to push that "delete member" key.
This following quote shows a lot of character, IMHO;
quote:I'm not ever going to reveal the details involving the banning of a specific user as there's simply no reason to assault someone's character.
Sorry this came this far.
Until that day
JayG
-------------------- JayG Posts: 42 | From North | Registered: Feb 2008
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Cobweb
Unregistered
posted
quote:Originally posted by Lou B: I'm not ever going to reveal the details involving the banning of a specific user as there's simply no reason to assault someone's character.
Don't worry, I have short term memory loss ,too.
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Having been a member for over five years, I have seen a lot of fads come and go. Sometimes they recycle the next year. Most, if not all of these "new discoveries" have no science behind them and some are probably dangerous. Stating this seems to be the offense.
This has always been the case but the amount of alternative med testimonials does seem to have increased in recent months, perhaps the last year. What has also increased is interpersonal spats leading to bannings. They rarely happend in previous years, other than to obvious trolls. I still check in but, basically, have lost interest.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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I know this "Cave's email" thread has been mentioned over on LNE and since my name has been mentioned as having been "involved" in the deleting of the thread on evolution I have to tell you that is unequivocally "FALSE", I did not contact the moderators. I visit over at LNE now and then just as those from LNE visit here.
I even tried to find the evolution thread and thought "YOU" might have deleted it for some reason. Otherwise there was nothing there that I saw that would be cause for deletion unless evolution is a verboten subject here.
Actually I was quite touched that you said I was "your new friend" even though I realize you said it "tongue in cheek". I was actually enjoying my interchanges with you.
Just so you know "I had nothing to do with your banning or Cave's and I even wrote you two a poem in a previous message in this thread, as an acknowledgement of your contributions to the dynamics of this board -- and yes it too was "tongue in cheek" (just teasing you a little), but meant to let you know I thought you both should still be here.
Anyway, I can't believe all the "RUMORS" flying around and all this jumping to conclusions about people does not seem to be revealing the truth of the matter as far as I can see. I am a forthright person and have no interest in deceiving you in any way and if I had complained to the moderators about you, I would tell you so when asked.
I think all this speculation is getting out of hand and perhaps you may be suspecting all the wrong people of involvement. As for me, I have no idea what happened or who was involved and whatever it was, I have taken no part in it.
I wish both you and Cave well and I hope whatever is taking place is resolved soon and you will be back if you wish to be. I also wish we all can find our own path to wellness and can support one another on our individual journeys.
Looking
Posts: 590 | From Canada | Registered: Oct 2007
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