posted
PLEASE hang in there nel! My family and Gfriend never "Understood" either. I've lost her and most of my family have come to slightly tollerate me by calling me nutz. (I prefer excentric) Try going to the Lyme Literate shrink tho. At least he/she "Listens". God bless & help you. Buzz
-------------------- 5 yr. Vet. of the Lyme war. Helping and sharing are now my only objectives.I have nothing to sell & I no longer interfear with things I cannot control. But, I have learned many good things from my affliction & am a better person for it. Posts: 51 | From Northeastern PA | Registered: Jul 2010
| IP: Logged |
posted
See Kirk's post. I hear you. I deal with it. It has really caused me to hate the "normal" people sometimes. Unfortunately all we can do is persevere.
I sometimes wish we could have Lyme communities.
Posts: 743 | From New York | Registered: Apr 2009
| IP: Logged |
posted
Would any family members agree to watch "Under Our Skin"? I know for some, it's helped their friends and family to finally get it. Good Luck
Posts: 246 | From south florida | Registered: Mar 2010
| IP: Logged |
posted
I know how you feel. My grown daughters dont get it. Ive just come to a point to where i dont care. I do what i can, when i can. Thats all. I have an understanding DH thank goodness. Even my 9yo says lyme disease sucks. Hes seen me in abject misery. He thinks the dietary restrictions are the worst...esp when the watermelon was brought out and i didnt have any lol. Keep hanging in there...maybe your LLMD can make a believer out of them.
Posts: 624 | From Oklahoma | Registered: Jun 2010
| IP: Logged |
posted
I'll just try and communicate things with them better... some of it might be my own fault for not telling everything thing I'm going through. I feel I've tried but maybe I haven't as much as I could. And then again, maybe I shouldn't. I don't want to put all this crap on other people... only my husband and direct family needs to truly get what I'm going through, since they are the ones who are directly affected.
Posts: 256 | From Texas | Registered: Jun 2010
| IP: Logged |
massman
Unregistered
posted
Great you have a patient man.
Sucks big time when your own family does not support you. On my bad days I feel like wishing it on almost all family members.
littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I get it...no one in my family does. My mom is an RN-doesn't believe in Lyme, keeps telling me I have fibro or RA.
No matter how many times I tell my husband about my symptoms it just doesn't sink in. No matter how many times I tell him it could takes years to get rid of this crap he tells me 'your not getting better maybe it's time to look for a different dx.'
Sometimes I just look at him and say Are you Serious??
My anxiety and irritability are through the roof. My pain is tremendous.
My PCP thinks I'm a drug addict-it's easier for a drug addict to get pain meds then a person in true Chronic pain who takes her meds as prescribed every time.
I wish I could just say I'm done, go away Lyme, I want my life back.
My husband has watched some of Under our Skin-he fell asleep watching it...nice.
I tell him how I'm feeling, but I think he just gets more annoyed than anything else that I'm still complaining about the same old ****.
I try to stop talking about it with him..but I always end up slipping up.
I get it, I really wish I had support. It sucks going through this "alone."
posted
IF THE IDSA, CDC, AND NIH REALLY DID ITS JOB, THEN THEY WOULD UNDERSTAND! THEY DON'T BELIEVE IT BECAUSE THE SYSTEM THEY BELIEVE IN DENIES IT!
Posts: 743 | From New York | Registered: Apr 2009
| IP: Logged |
posted
I just posted about two posts dealing with this very thing. My family attributes every complaint I have to a different thing, and they have been subtly suggesting that I am a hypochondriac.
Well 38 years of never having been a hypochrondriac bought me about 6 months of respect and consideration from these people.
I've stopped caring about what they say, they just don't get it, its that simple. I'm keeping my problems to my self and working hard to think positively.
Posts: 41 | From astoria, new york | Registered: Feb 2010
| IP: Logged |
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Been there, done that. I dumped a five year + boyfriend over it, and pretty much turned away any family that didn't get it.
If the ones outside your roof don't get it- it can be "no big deal" if we simply don't tolerate them. If its UNDER the roof... look out. Someone has to change, and it isn't us... we're sick
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
| IP: Logged |
posted
i totally get the feeling that no-one gets it... everyday. it is SO frustrating!
i try to remember that at least Jesus gets it and knows my pain.
it's VERY frustrating though! sometimes im tempted to just cut everyone out of my life, but unless someone has a chronic illness, it's just impossible for them to understand.
if there's one good thing that has come out of my years of sickness... it's that i have the ability to empathize properly with other ill people now. you really have to go through this yourself before you can truly "get it"
Posts: 220 | From Kansas | Registered: Mar 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic