This second article is presented as a series of ten pictures, with captions. It briefly discusses Lyme Disease, Multiple Sclerosis, Chronic Fatigue Syndrome, Fibromyalgia, prostatitis, syphilis, Lupus, AIDS, and Puerperal Fever (infection following childbirth).
This is the information he presents about Lyme Disease:
quote: And then there are illnesses like Lyme disease (transmitted in some situations by the deer tick, shown here), in which a combination of misinformation and potentially unclear diagnostic tests can lead to patient suffering, excessive treatments, and even medical fraud.
First presenting itself as a mysterious cluster of juvenile-arthritis cases in 1975, Lyme disease continues to fool patients and physicians alike.
It has been called a "great imitator" because of the wide range of symptoms it is responsible for, and the fact that these symptoms can overlap with those of causes as diverse as the common cold, normal aches and pains, and serious illnesses like multiple sclerosis or Alzheimer's.
The good news is that active Lyme disease is effectively treated by standard antibiotic therapies that are generally easy to tolerate, and is efficiently diagnosed by infectious-disease specialists experienced in treating the disease.
Here, the pathogen that causes Lyme disease is shown in human blood.
As of this date, there are eight comments.
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Looks like old Phil and the IDSA PR folks are busy these days.. spreading more of their garbage around. You'd think they could find someone else to play with for a while, instead of picking on sick Lyme patients.
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I responded to the new one you just presented. Here is what I said:
I think we can all appreciate the theme of the commentary here. 10 different conditions were included in this article: History's Mystery Illnesses, but only Lyme Disease is receiving the bulk of attention from commentators. The reason is simple. You can't tell a massive group of people, who are dealing with a serious disabling illness that they don't have the disease which they do. The evidence, the individual reports, the scientific debate, all point to the possibility that people like Dr. Shapiro are at best, ignorant. Denying the evidence is unethical. Notice I haven't discussed Conflicts of interest much in any of the comments I've made. A group of doctors -- maybe 6-10 in total made the media rounds, telling reporters "Lyme isn't a big deal, easy to treat, patients need to get off the internet" -- yet, there is also abundant evidence confirming that they have conflicts of interest in the very agenda they perpetuate.
This is not a small problem. It's not going away. We are not a "small" group as purported by a number of specialists who work the media circuits. The same physicians who constantly repeat supercilious quotes (internet-ectomy) and feigned sympathy.
Dr. Eugene Shapiro said this comment in a few different media/educational settings, all from different sources, and all from different time periods.
Here is commentary he made:
""There is a lot of misinformation about Lyme disease," said Dr. Eugene Shapiro, a pediatrician and Lyme specialist from Yale University, who blames horror stories on the Internet for scaring parents about the disease.
"I tell parents to get an Internet-ectomy," he said. "You live your life and there is a lot of risk out there, but Lyme disease is treatable and curable."
Reference: abcnews.go.com
Then an PDF File titled 25 Shapiro Vaccines, used at University Of California San Francisco to educate students states:
"VACCINES: Resistance from Parents, 1. Major problem, 2. I sometimes recommend a surgical procedure: an internet-ectomy!, 3. Many studies have indicated strongest influence is recommendations from a trusted friend, family member, (doctor?)"
Reference: ucsfcme.com
And of course, the recent Newsweek Articles. Some of these "physicians" behave more like political agitators like Newt Gingrich, Glenn Beck or Sean Hannity than professional physicians and researchers. Their job is to weigh the evidence. The problem is, they only weigh the evidence that supports their agenda.
We are not going away. We will persist long after these physicians finish making their media rounds and pass away or retire. Oddly, this is often what has to occur for scientific revolutions to end and for a debate to finally conclude. Our survival depends on our perseverance to ensure the evidence available comes to light so that our suffering will end. Theirs depends on biased views, financial interests, and their personal legacy, which will not hold up.
We are not going away.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
chronic lyme was raging well before the "Internet crazies" started spreading their insanity.
its the classic argument by the immoral dirtbag doctors; "your crazy". how do you defend it? "but dr i have tremors"...your crazy. "but dr my head is spinning"...your crazy. "but dr my joints hurt so bad i cant walk"...your crazy.
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Did you see the response left by the doctor? It was oustanding! You must go in & read it.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
To read the comments, click on page 10. You don't need to scroll through all ten pictures.
Here is the comment by "Doc."
quote: The anger I hear about the article is truly warranted. I went to 24 specialists before I was diagnosed correctly. I was told I had everything from MS to Lou Gehrig's disease. I finally began doing some intense reseaarch and made the diagnosis myself.
I happen to be a physician who has had Lyme's Disease since 1994. By 1996 the pain and symptoms were so great, I was forced to retire from practice. My future uncertain, we sold our home and moved to Arizona with our two pre-teen kids, because people with the disease tend to do better in a warm, dry, climate. I have found it to be true.
In 1999 after going without sleep for nine days, I told my wife,"Within the next 48 hours I will begin hallucinating due to sleep deprivation. As soon as it starts call an ambulance." The next evening I was rushed to the hospital.
My wife tried to explain to the ER Physicians I had Lyme Disease, but they decided to ignore her due to their own ignorance. They gave me medication that caused me to have Grand Mal seizures and I lapsed into a coma. My wife was told I was not going to leave the hospital alive, even if I did, I would be dead within . Twelve years later, I am still around.
Most physicians I saw would refer me to another physician they didn't waqnt a difficult case. You see, medical schools and textbooks tell us, if it can't be diagnosed through medical tests, it either doesn't exist or the patient is suffering from some psychiatric disorder.
In all my years of research, nothing has changed. If it weren't for HIV, Lyme's Disease would be the biggest epidemic in the country. Most doctors outside the Northeast know nothing about the disease, nor do they care.
As one doctor said to me, "i'm much too busy to learn about Lyme's Disease." I politely told him I had obviously made a mistake in setting up an appointment with him. "If you have no knowledge of Lyme's Disease, and no desire to learn; there is no way you are capable of treating me successfully."
If this is the way my colleagues treated me, I cannot begin to fathom how they treat you. There was a vaccine for Lyme's, but the company who made it stopped, claiming there was no demand for it.
The disease can affect every organ in your body. Make sure you get a yearly physical. Have a cardiac stress test performed, and have full blood tests every six months. If it weren't for my intense desire to help people with this disease, I would have given up years ago.
All I can say to you is, there is always hope. Fight for your life! Become a student of your disease! You'll soon find out you know more about it than your physician. Maybe then you will gain some respect from your physician.
Find a doctor who will listen and work with you. If you haven't found one yet, keep looking until you do.
There is power in numbers, and you are the only hope for those who have the disease, and those who will in the future. Try finding or forming a support group, discuss your problems with your family members. Your life is at stake!
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Well said. It's nice to hear people care.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Nice response, Metallic Blue.
Posts: 743 | From New York | Registered: Apr 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Good job all. Thanks for posting....
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
John, if you thought that was nice, you're really going to enjoy this.
I just posted this on the newsweek website. A number of researchers and physicians are reading it now. Those on both sides of the debate will see this.
I've responded to countless discussions on this issue over the years and quite frankly I'm pretty tired of being polite while offering competent counter arguments. I am never addressed directly. My points are never countered with anything more than cute sound bytes and talking points made by a group of individuals who can't see the truth standing before them.
Newsweek, you are entirely responsible for forcing my hand and breaking the Camel's back here.
I've released this paper publicly to ensure that the truth is no longer obscured by "facts." Dr. Shapiro and his collaborators propound an archaic argument and treatment approach for Lyme Disease that is not only rooted, but entirely soaked, in dogma and ignorance. Now people may deliver the evidence immediately, via a simple link. They don't have to buy a book, read hundreds of studies, or be a genius with the initials Ph.D., or M.D. after their names in order to get this information to those who need and demand it most.
Skepticism is the heart of science. Cynicism is the death of reason. The debate over Chronic Lyme Disease has died a thousand deaths. Let the intelligent skeptic read what I now have to say.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Thats awesome.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
In respect to my paper:
Post this on as many pages as you typically access, whether it be web forums, facebook, myspace, lymenet, mdjunction, lymefriends, healingwell, or any other.
Get it to the media, to friends, family and doctors who both believe and disbelieve that chronic infection is real.
posted
yes corruption grandmother...there is a deliberate aspect to some of this that defies full decription but to some degree is rooted in pride...of a depth that creates wars.
and for sure this is war.
kudoes metallic
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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