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» LymeNet Flash » Questions and Discussion » General Support » Great Day Yesterday at the IDSA Protest!

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Author Topic: Great Day Yesterday at the IDSA Protest!
Paul Mall
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Hey Everyone we had a great day yesterday at the IDSA Protest. Many of the attending docs were asking questions and took the time to talk with us and take hand outs.

Thanks to all those who came and showed their support and those who couldn't make it but gave us much energy in Spirit!

 -

Paul

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Lymetoo
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That's amazing that they would even talk to you guys .. and take handouts?? wow!

What does the "IDSA" sign say??

--------------------
--Lymetutu--
Opinions, not medical advice!

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dmc
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You all did agreat job. Paul you were wonderful organizing.

Thank you. [bow]

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Paul Mall
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@LymeToo you mean the big banner?

I made two

the one in this Picture Says

I nfectious
D eath
S entence
A ssociation

the other one I made said

I gnorance
D oesn't
S olve
A nything

You can find a lot more pics on FB here

http://www.facebook.com/events/#!/media/set/?set=a.228583243873279.60115.100001648150849&type=3

Paul

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Lymetoo
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This one!

I nfectious
D eath
S entence
A ssociation

Love it!! Thanks for the link.

GREAT IDEA to be lying down on the ground with signs! Super effective!
(hope no one got a tick!)

I also like the sign that says "Lyme disease is persistent and so are we!"

--------------------
--Lymetutu--
Opinions, not medical advice!

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Dogsandcats
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Thank you for representing all of us who can't be there..get the message out!!

--------------------
God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

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Robin123
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Outstanding job, everyone!! I just looked at the fb pics - the last one looks like conference attendees are taking pics of the protest - I'm sure they were all aware of the protest!
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Keebler
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-
Paul & all who made Boston happen:

I'm so impressed with your success. Class act, I'd say, this voicing astonishment in a concerted effort. Thanks for all the hard work.

The signs all looked great.

I would have been possitively impressed had I encountered you guys on the sidewalk (but I am not able to even be out in traffic at all, so I'm glad you all were).

http://www.lymedisease.org/news/lyme_disease_views/boston.html

NEWS: Lyme patients rally outside IDSA's annual meeting in Boston

October 22, 2011

According to participant Sharon Rainey, about 70 people gathered peacefully in Boston outside the annual IDSA convention to protest the current treatment guidelines for Lyme disease.

Coming from as far as Arizona, Wisconsin and Virginia, Lyme patients held homemade signs and banners, and chanted, "I-D-S-A, change your Lyme disease guidelines today."

Approximately ten IDSA convention attendees approached the protesters individually, asking questions and listening to Lyme patients' concerns.

Link below to photos and video.

------------------

Although this is a FaceBook page for lymedisease.org - it does connect for me. The one posted above would not let me connect because I dropped my FB account.

So, for those who may not have a Facebook account, the link here worked for me:
------------

http://www.facebook.com/lymedisease.org

Many great photos, scroll down to see a one -minute video clip - a panorama of the protesters & their signs.
-

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Keebler
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-
"Approximately ten IDSA convention attendees approached the protesters individually, asking questions and listening to Lyme patients' concerns."
--------

I just have to say how impressive it was that ten doctors asked questions and listened. Even (just) ten. That's rare. Good for them. And good for you for setting up an environment in which that could happen.
-

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Dekrator48
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Great job, Paul, and everyone else who attended!!

Thank you!!!!!!!!!!!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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tdtid
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Yes, Great job, Paul.

Lymetoo...that was one of my signs. Glad you liked it. :-)

Keebler, I think in reality, we had closer to 80. The number Sharon got was from a sign her husband has us all sign, but some came a bit later and never signed in.

Thank you all that attended and as Paul says, also to those that were there in spirit.

Cathy

--------------------
"To Dream The Impossible Dream" Man of La Mancha

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Robin123
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I find it interesting that Paul said on fb that a lot of the attendees did not know much about Lyme disease - simply ignorant. wow. Thx for educating them!
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lou
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Thank you so much for doing this.
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penguingirl
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Next year is in San Diego.

http://www.idweek.org/

--------------------
 -

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Lymetoo
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OHHHH... I like that they have several organizations at the convention!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Paul Mall
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I wrote an article explaining why we were out there.

this might be good to have your friends and family look at also.

http://www.squidoo.com/lyme-patients-from-across-the-country-gather-in-protest-of-the-idsa-lyme-disease-guidelines

Share with the world

Paul

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Tincup
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Good job Paul. Thank you.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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twicebitten
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Thank you, thank you and thank you! To Paul and everyone who showed up. If I could have I would have. Good stuff!! Great signs.

--------------------
One day at a time

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migs
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That is awesome. Nice one.

I am in BC, Canada and I'll be in San Diego next year.

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mbdq
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Great job and thank you for all you do.
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sammy
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Wow, you all did great! Thanks for going and representing all of us who couldn't be there. Maybe next year I'll be well enough to join with you all [Smile]
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Harmony
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Thank you!!!

I just sent the link to three sick people who do not know that a negative test is only 40% accurate.

Your material helps to get the word out.

--------------------
Persistence, persistence, persistence!!!
"Nothing in the world can take the place of persistence...
Persistence and determination are omnipotent."
attributed to Calvin Coolidge

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Tricky Tickey
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I was so sorry to have missed this very important rally. I was at Mayday and it was really good for me. I plan to be at the next rally. I'm bringing others from my state as well.

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

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faithful777
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Awesome Article. Thank you!

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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Laura_W
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Thank you!!!!

--------------------
10/10 EIA 1.4+, 41 (IGG), 23 (IGM)
Bitten over 20 years ago.
Currently not treating, looking for a Dr who will work with my insurance lol.

More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision.

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