posted
What are you excited to do when your health returns?
I'm gonna spend snow days playing in the snow with my kids. I don't know how they can spend so much time out in the snow and cold but I'd really like to figure it out.
I'm gonna take up running, at least a little. I've never been a runner but I think after having such a hard time walking for so long, I'll be like Forrest and just wanna keep on running.
And I'm gonna go to Vegas and party it up. I said I was gonna do that for my 40th but instead I spent it home with Lyme.
Posts: 707 | From Colorado | Registered: Jul 2010
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posted
I'm going to travel to visit the bravest people I know..all of you !!!!
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
go to the beach for a week or two. soak up sun and the serenity the ocean brings.
I won't be tired, just relaxed Across my face will be a smile God will be my guide and each day will be pure bliss.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I'm going to take dance lessons!! I'm going to learn to ski, I'm going to learn to swim and I'm going to hit the gym and I shall never complain when I have to work out again!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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Go join the people around the country marching and fighting for Lyme awareness!
-------------------- "To eat is a necessity, but to eat intelligently is an art" - LaRochefoucauld
Lyme neuro symptoms for 20+ years. Infected in Maryland. Diagnosed with Lyme Jan 2011. (previously diagnosed with CFS, Fibro, peripheral neuropathy) Posts: 261 | From Colorado | Registered: Oct 2010
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James1979
Unregistered
posted
Jlp - Good idea for a thread!
sk8ter - just please call before you come. I don't like surprises.
When I get better, I'm gonna take it easy and take good care of my health for at least a few more months, so that the Lyme doesn't come back. That's basically what I'm doing right now. 2.5 weeks off abx, and so far so good. But don't forget that it's not over right when you get better!
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posted
Get back to the gym and exercise again without pain.
Help educate family and others about this terrible disease.
Hopefully never have to go thru this again.
Posts: 749 | From State full of ticks | Registered: Dec 2008
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
First off get married. My b4 and I of 5 years were headed that way until I got sick a year ago.
Travel
Move to Colorado
go to the gym
Help other as much as possibble
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I'd like to remember all the stuff i have forgotten. I'd like to walk through my kitchen door and not bash into the left side frame. i'd like to apologize for yelling at some people years ago when this was all new and fresh and the bugs really had me in their control. i'd like to bend over without making that whimpering sound. see? just the simple stuff.......that's all i want.
Posts: 37 | From Louisiana | Registered: Oct 2011
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
When my body is better, I'll be back on my bike, zooming around, just like I used to. When my brain is better, I'll get back to the business that I love. Ooh... and I'll eat Fritos.
Posts: 251 | From Florida | Registered: Aug 2011
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quote:Originally posted by MannaMe: Travel far & wide
Take the children to the ocean, and the zoo, and the cabin.
Oooh, the ocean and the zoo I get, but the cabin, that one will take some real healing for me. The cabins we like to go to are in a heavily forested area. When I can do that without fear, I'll know I'm really healed.
Posts: 707 | From Colorado | Registered: Jul 2010
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posted
snowboard go on all the crazy theme park rides, and go to a park/zoo without riding in a wheelchair eat boston cream donuts use a trampoline finish my degree fly to places I've never been only go to a doctor once a year like normal people
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
i am so happy that you all have plans for the future. i wish you good health and unlimited joy.
Posts: 651 | From ct | Registered: Sep 2011
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I'm with sk8tr. I want to travel across the US in my comfy truck pulling a camper...visiting National and state parks and lyme warriors.
Not sure how I will come up with the funds for this yet.
I really miss my old stompping grounds so would like to go there too. San Luis Obispo County, CA.
See my old house. I bet there will have been a lot of changes to the area.
Lots of beautiful places to visit there Oso Flaco, Morro Bay, Los Osos, Pismo Beach, Montana de Oro
I could spend a week just in SLO County.
I'd like to go up the coast on hwy 1 and see Big Sur area again, Go out on the MOnterey Pier again, on to the Coastal REdwoods.
I'd like to back to the Redwoods...can't recall the parks names now. I know the cabins I once stayed in have been replaced by a lodge.
I'd like to take my grandkids on a National Park outing...Yosemite perhaps. I really love Yosemite and dont' want to leave when I go there.
I feel at home.
I'd like to go in the winter when they can do some ice skating and warm themselves by the big outdoor fire at the outdoor ice rink.
Locally, I'd like to get on a horse and ride the trail that I currently am doing a 10 min loop when able.
I'd like to ride the whole trail in the National Forest.
I'd like to see Dollywood...especially the part where they live as if they were in the 1800's.
I'd like to see the ducks that live in a penthouse at a hotel come down the elevator and go in the pond at the hotel...can't recall the name of the hotel right now either
I'd like to go down a river...not white water rafting anymore.
Just a quiet cruise down a river.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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penguingirl
Frequent Contributor (1K+ posts)
Member # 28688
posted
Play tennis again!
Go running - I was never a big runner but I liked it here and there to get the heart rate up.. as Scorpiogirl said, not complain about working out.. now that we know how it feels to be stripped of working out..
-------------------- Posts: 1204 | From USA | Registered: Oct 2010
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posted
Go back to Paris, to finish my Masters program I was in when I got sick.
And RUNNING again, I was a life long competitive runner.
Posts: 844 | From CA | Registered: Apr 2010
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Today if I were well and had the funds:
I would call and make an appointment to have the carpets cleaned, do what use to be my Saturday morning clean house and laundry cleaning, go to a movie, go out to eat, order Christmas gifts on line for my grandkids, and go truck shopping.
I also would make a few phone calls to catch up with what is going on in the lives of others.
And get the CPU to the computer fix it place to see why I no longer have sound....if I had the funds...I wouldn't do that...I would just get a new lap top.
Pack my bags and leave for a road trip an hour or so before dawn tomorrow.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
~ I will date my husband all over again; go dancing (we used to love to dance and yes he even loves dancing), go hang out with friends at the local bar, shoot pool, throw some darts and maybe go on a real honeymoon.
~ I will really clean the house,finish any projects I started on "good days" and spruce up all the things that have been neglected or pushed to the back burner, but I would NOT become a crazy cleaner again. "Clean" is good enough now, sterilized is not necessary. I am now a (mostly) reformed super clean freak.
~ I will go to college and do something to help Lyme patients (or chronically ill) in some way, shape or form. I don't know what, but I'll figure it out.
Sad thing is now that I want to go to college I'm not able to, physically or intellectually and I get free tuition. (Hubby works at state university=free tuition). Someday though...
~ I will live my life with no restrictions, without worrying about the "crash". I will go back to being spontaneous and jumping at the chance to try new/old things.
~ I am not saying anything about my kids and doing stuff with/for them because I have strived very hard to not let this DD affect my being a mom. I have not missed very many practices, games, plays, recitals, etc. of theirs.
But I will do all these things with them without thinking about the "crash" or planning everything around an event, like rest times or cereal for dinner to save the energy for the event and clearing my schedule for the crash.
OMG! I could go on forever with this, there are so many things left for me to do and see. What a great thread, thank you.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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posted
This is a great thread! I'm feeling about 85% lately (about 2 months worth), so these are all good ideas for me!
I am going to do a gluten challenge when I am truly well. We don't know if I had gluten intolerance or lyme/babesia/bartonella reaction. So, I'm going to give it a shot.
I want to go back to jogging. Hard to believe that two years ago at this time I was training for a half marathon.
Otherwise, I look forward to just going forward, waking up every day and "going," without planning around medication, diet, potential crashes, etc.
Best to all of us as we continue toward our dreams!
Posts: 447 | From Vermont | Registered: Jan 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Go to kohls and shop, make spontaneous plans, one foot out the door and living in a reality instead of this stuff. Being the mom to my son without feeling guilty that he got stuck having me, i used to be a fun mom before this, having my husband come home and being enthusiastic about the next day, Just loving and living life.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Go jogging again. Travel with my kids before they fly the coop.
Sit on the beach, then sit on the beach some more. Walk on the beach.....look for shells, snorkel, smell the ocean, swim in the ocean....
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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I am gonna hunt down that bug that bit me and do like a SAW type torture on him.. Posts: 184 | From taking pills | Registered: Oct 2011
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posted
I would like to have kids....and become a runner.. and start dancing again... I was a dancer all through high school and college, then I just couldn't keep up one day...I would give anything to be in that shape again and DANCE...the feeling is super awesome!
Posts: 148 | From AZ | Registered: Sep 2011
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posted
Run triathlons again...LOTS AND LOTS OF THEM!
Oh, and coach soccer again, too! How I miss those kids!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
The first thing I'm going to do is go have a great dinner with my family. I'm going to have:
Pomegranite Martini Crabcake appetizer Chicken Piccata w/pasta and then a beautiful piece of chocolate cheesecake.
I. can't. wait! Posts: 181 | From Midwest girl gone home | Registered: Oct 2011
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
When I am finished with Lyme disease, I am hopeful that my sun allergy/autoimmune condition will be gone and I can be in the sun. It has been 13 years of avoiding the sun. I will be in the sun like a normal person instead of protected from head to toe with sun clothing looking like a fool.
My family will take their first beach vacation in a very, very long time.
When I am finished with Lyme disease, I am going to get back to my prediseased weight. While many of you lost weight, I gained.
My children have only known me with a disease that we later learned I passed to them. I would like to have a new healthy relationship with them and never say again, "Please take your pills."
When I get better, I am going to stop going to Rite-Aid. I would like to stop being on a first name basis with the pharmacist who recognizes my voice when I call. I would like to end pharmacy trips post Lyme disease.
When I am healthy, I am going to do more Lyme advocacy work.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I'm gonna make friends, a lot of them. Invite people to my home, go to happy hour, dates with my husband. Lymeland is a lonely place for a social girl.
Posts: 707 | From Colorado | Registered: Jul 2010
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