Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Just want to know more about this particular piece. I tried but could not find details below.
A click on the bill presenter's name brings nothing. She is not allowing any details about her affiliations.
What group is sponsoring this?
Who has endorsed it?
The "ask" seems valid & sincere - but vague, and that could lead to a boomerang effect. IDSA doctors will say that people are being assessed.
Has the LDA, LymeDisease.org and similar lyme organizations that are ILADS-minded?
It's really important to know that before signing. In no way do I intend to discredit the author of this or her good intentions
but the wrong bill could replace one that is more specific as the one currently being circulated by the group below. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This is the petition that is sponsored by LymeDisease.org and other ILADS-minded lyme organizations.
Not sure how that would match up with the one above but here, for comparison:
posted
Nobody HAS to sign it. It's one of my friends on Twitter who has late stage lyme.
It goes to Senators Schumer and Gillibrand. Schumer himself had lyme disease and it's an issue for him. It just asks for fair treatment. No it's not ILADS backed, there is only one that is. This one:
posted
Thanks Keebler, just saw you posted before I did. Even if we get one signature more it's better than before.
Posts: 147 | From youngstown | Registered: Oct 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
At the recent Skidmore College forum, I heard one of the speakers state that the petition endorsed by ILADS was turned down by IDSA with the excuse that the guidelines were recently reviewed and found to be appropriate!
I hope I heard wrong. This was very unsettling to say the least. If anyone else attending the Skidmore conference heard this, as well, please let me know.
In an effort to continue to promote awareness of Lyme Disease and how wrong the current system is... I also signed the above petition that Outerspace posted and have passed it on to friends and family requesting their signatures.
A few weeks ago, I also wrote to my legislators, asking for their endorsement of HR Bill 2557. You can find out how to go about doing this by the website below.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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