-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
She was brought to the hospital because she stopped eating/ lost so much weight-
Her infections manifest as PANS/PANDAS-
I have also not heard any updates.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
And is that hospital that overruled her parents doing better with her treatment? If not, it seems like they should be a target for a lawsuit.
Posts: 2888 | From USA | Registered: Mar 2004
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quote:Originally posted by poppy: And is that hospital that overruled her parents doing better with her treatment? If not, it seems like they should be a target for a lawsuit.
- Yes. See link above.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Lymetoo,
I read the above link, but I'm having trouble finding where the hospital is doing better than the parents with her treatment.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Due to the gag order no one really knows how she is doing. bch is not known for their lyme or PANS/PANDAS friendly aware staff. I say that frkm personal knowledge. this is not the only PANDAS family this has happened to there either.
mgh is down the street and they at leasg have PANDAS docs.
there is a free elizabeth wray page on fb I started back during the initial nonsense. but dont have much to report
Posts: 3905 | From USA | Registered: May 2007
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