LymeNet Flash: All Lyme friends please sign this petition

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»	LymeNet Flash » Questions and Discussion » General Support » All Lyme friends please sign this petition

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Topic: All Lyme friends please sign this petition

Paul Mall
LymeNet Contributor
Member # 27581

posted

https://petitions.whitehouse.gov/petition/reform-infectious-disease-society-america-treatment-guidelines-lyme-disease/Pj9jG0pX#thank-you=p

Posts: 925 | From Connecticut | Registered: Aug 2010 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Paul,

This link is from someone's private email account. I'm thinking it's from yours - saying that the transaction was not yet complete.

Message on that page states:

IMPORTANT: You have not finished creating your account. You will receive an email from us within a few minutes. You must click on the link in that email to continue.

end message
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Also not sure about the wording in the petition. It's not clearly stated that non-IDSA doctors need to be the ones to rework the guidelines.

There is a bill already to go in one of the houses of congress. It would be good to get that back up and going.

One of the top lyme advocacy groups might be great help on that. Always best to have their guidance and involvement in any political measures.

There have been bills in the past that have had deceptive wording or unclear to those who would not be LL. That's why I'm so careful with what I sign. Wish I knew what happened to that bill that has already gotten through a committee and is all ready - just waiting.
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[ 01-19-2013, 02:15 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

jjourneys
LymeNet Contributor
Member # 39813

posted

Keebler - what bill was so close already? We need to find it and get it pushed through. Can the information be found?

Posts: 250 | From East Coast | Registered: Jan 2013 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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jjourneys,

contact staff from any group here:

Lyme Disease Association - http://www.lymediseaseassociation.org

Lyme Disease.org - http://www.lymedisease.org

ILADS - http://www.ILADS.org

Tick-Borne Disease Alliance - http://tbdalliance.org

Time for Lyme - http://timeforlyme.org

Your STATE, regional &/or local lyme support groups or networks.
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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