posted
I am constantly meeting people who have symptoms of biotoxin illness, Lyme, mold.
I share with them stuff that I have learned. How they can help themselves. What I get back is "well, I have a really good doctor" and then they don't do a freaking thing to help themselves.
Why do I even bother? It's like people are comfortable with their illness and are content to live their lives being sick. I just don't get it.
Why are people like sheep? The CDC says...
It's so damn frustrating.
Posts: 845 | From Northeast | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Many have not been taught how to think critically. Many just take what their doctor tells them - or what a network newscaster - or even the pharmaceutical advertisers tell them.
If they have a good doctor, great. But, even with the best doctor, most only get a 10 minute appointment. That's not much time for continued education.
Mass market media is not doing its job regarding posing critical questions and a good sampling of all the aspects of health or offering a wide range of professionals who "consult" on their newscasts.
Many just don't think because they've not been taught there is more to think about. Big sigh.
Still, for all those who want to learn more, I just want to say I'm so grateful to the world wide web as a key tool for continued education, even if there is a lot of censorship by the FDA (which seems to be getting worse but I hope still has a chance to get better).
Generally, people put things into categories that make it simple. And there is really nothing simple about failing health (and certainly not about lyme). Some may be too ill or too tired to be able to concentrate, actually.
Again, though, here's to those who are working hard to help us all become better educated. -
[ 03-22-2013, 05:23 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
And the WHEAT... the wheat just drives me crazy!
and the carbs, people with diabetes who just rely on their medication and won't change their diet... that irks me! LOL
Posts: 631 | From the south | Registered: Nov 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I know what you mean! I've had 2 mothers who confided in me with their children's mysterious illness. One sent me a pic of the child's bulls eye rash (from a mosquito bite). Tested the kid, of course negative, then tested positive for West Nile (or so the doc told them). She said 'thank you for the help' and that was it. I don't believe it was West Nile one bit: bulls eye is definitive, yet she knows she has a good doctor who knows about these things, even though I presented the facts.
Another mother gave me ALL symptoms her son had, been to the biggest hospital in the state. They told her nothing was wrong with him, though he gets recurring fevers, joint knee pain, headaches.....all symptoms started after tick bites! Gave her a copy of Under Our Skin, all the info. doctor referral, the works. Yet she believes nothing is wrong. The best hospital in the state told her so. Frustrating? You bet!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I've tried and tried. After awhile I gave up
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yep. been there...done that like most of us. i get my little talk down to a few sentences..."sounds like you might be dealing with lyme...here's a few good resources (not idsa sites)...call me if you want more info"
some call right away-some never. some in 5 months...or 5 years. you never know.
but dont stress over it cuz stress is bad for u.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Educating yourself about medical things is not easy. And most people do not have any kind of educational background to take it on. That is why it is easier to just rely on the doc. Why have a dog and do the barking yourself?
They also say that the schools are using more multiple choice testing which does not develop critical thinking skills.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
I find it's a bell curve - a few people get it right away 'cause they're looking for answers, then the majority listen, but do they hear? and then a few fight the info.
Maybe it takes several times for some to hear something. So I figure that my educating efforts are one of those times along the way, and maybe by the 10th time they hear the info,
maybe from a close friend, or a famous person they admire gets sick with Lyme and co's, then they start to pay attention.
So I still consider that there's value in the effort to educate even if the person isn't welcoming the news with open arms at the time.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Oh please, don't get me started. If every person that I mentioned helpful medical insights to actually took my advice, there would be so many happy, healthier people.
It's so true - people just have to find their own path (e.g. be desperate enough to think outside the box).
Even my own husband falls into this category, and he is the sickest of us all! He fights me every step of the way.
And I give him the speech, "don't you want to get better? If you do, you have to take an active role in your health and treatment!"
Then again, his (suspected) bartonella is making his personality so negative and hurtful that I can hardly speak to him any more.
At least I can try to help myself and my 2 children get better.
I can't be a saint any more. But I wish so much that I people would listen.
So much needless suffering and denial.
Posts: 348 | From NJ | Registered: Sep 2011
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Look at this issue differently. A person in this society is conditioned to be who they are including all of us. Conditioned by media and media conditions enough people to be the norm. This conditioning is enormous, worse than an alcohol or cigarette addiction in my opinion. To battle this conditioning means stepping out of the box. However, this thinking is like a cage with a wide open door. So instead of looking at them staying in the cage. Say to yourself, I have the courage to get out of the cage and give yourself some kudos. And also think how many folks stay in their cages to those who get out of them. In my mind, the cage is a metaphor for the mental structuring of the mind -- very much like an addiction where an addiction is a different cage. Folks who go beyond the cage do much better, I feel I have and I'm sure you all will too.
So looking at it all as a single emotion, should we really feel angry, and be sure to avoid feeling sad -- it's not your choice or should instead feel empowered and happy with our own choices. Our own choices show great will power to view the world in our own making -- that's been my view in my choices.
So step back for 10 or 20 minutes and appreciate where you are! and where you want to go, there are many cages in this disease we all need to walk out of.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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posted
Thanks for your comments everyone. At the time when I wrote this I was just feeling a little down and ****ed off.
Not that I would want to trade with any of these people and their bogus diagnosis's but their ignorance is bliss in a way. They just look at it as it's not their job (it's their doctors).
In a way I wish I was still naive to the way our world works too. It's like to know what we know is like a burden, to know the truth, that it's all about egos, money status and all of the things that can make the powers that be make bad choices for the rest of us.
It was much easier to go about my merry little way in life, assuming that our government, health care, corporations and so forth, had our best interest first and foremost.
I agree about the conditioning, but I also realize life is a little brighter when you think that people (in power) are looking out for you.
I'm not very good at expressing myself about things I can't really put my finger on, but I hope you guys get what I am trying to say.
Posts: 845 | From Northeast | Registered: May 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
RC1 -- you expressed it very well, but when you think of it. You have willpower, willpower is the power to venture into the unknown, isn't it? It is also the power to know the truth. There was a movie called "Stepford Wives" awhile back ago. Wouldn't the powers in control want to condition us into what they want us to be?
To summarize:
> Be exstatic your out of the cage > Be enthused you can learn new ways to look at life > Be enthralled by the mystery of our existence as we challenge ourselves into solving the lyme puzzle > Be thankful for the spirit that drives you to be more
Imagine the disease as excess baggage, actually pause and meditate on it. Use this will power to unload it. You can already see those who don't leave the cage, don't get rid of the disease.
Best of luck mastering life beyond the cage.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Imagine the disease as excess baggage, actually pause and meditate on it. Use this will power to unload it. You can already see those who don't leave the cage, don't get rid of the disease.
- Very true!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
I think many people were conditioned by their parents when it comes to doctors, teachers, priests, etc. Folks were raised not to question anything these people (especially doctors) said.
Thank goodness I wasn't raised that way! Never was in any cage and never will be. And that goes for my kids. It's been a blessing to be a "free thinker." I wish more people were.
Posts: 1885 | From here | Registered: Jul 2012
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
quote:Originally posted by beaches: I think many people were conditioned by their parents when it comes to doctors, teachers, priests, etc. Folks were raised not to question anything these people (especially doctors) said.
Thank goodness I wasn't raised that way! Never was in any cage and never will be. And that goes for my kids. It's been a blessing to be a "free thinker." I wish more people were.
Me too, Beaches! Yes, it is frustrating to tell people things that you know will help them, only to have them ignore it.
But I agree it is great to be an outside-the-box thinker. I wish more DOCTORS were this way, too!
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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lymie_in_md
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Member # 14197
posted
lostlyme -- I think that is perfect for this topic. In the past you might get away with being in the cage. With the environmental changes either in spraying, emf noise, quality of food or the attack by the media on our psyche. Can we afford the comfort of a caged and conditioned world when our health is at risk. In essense the caged area is being poisoned by external forces making it more difficult to either get or be well.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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posted
How could you expect to lead anyone on a path with Lyme disease? The disease and its co-infections do not affect one single person the same way. What may work for you may not be the right choice for someone else. A focus on your own healing is all that should matter. :-)
Posts: 267 | From South | Registered: Oct 2011
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
It is very hard for people to believe that the medical community does not know how to diagnose and treat lyme. That you have to go "underground" to get help. It makes us sound like nut cases.
A person has to be severly ill to want help, and they still may not believe that lyme is behind it. Look at Michael J. Fox. He had lyme before developing Parkinsons, but doesn't believe there is a connection. Fully trusts his doctor.
Until the Infectious Disease Society clears up its mess and the average docctor has true lyme awareness, this won't change.
Also, people have become very "simple-minded". Putting things in nice, neat catagories. People have lost their depth. Maybe as a reaction to such a complex and unpredictable world. Keeping things simple helps them to feel more secure.
But it is hard when trying to get emotional support from family and friends.
Posts: 1358 | From Midwest | Registered: Apr 2009
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posted
Rivendell you nailed it. That I what I was trying to say. I totally feel like a nut case with my stories of mold, 3 years of antibiotics, all these crazy infections, no sugar, no gluten...blah blah.
Are we better off to protect ourselves and keep quiet, or be brave and risk being perceived as nut jobs by sharing what we know to be true?
Posts: 845 | From Northeast | Registered: May 2011
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posted
RC1 are you cured? I have enjoyed reading some of your posts, but am very confused over many of your posts as it seems one month you are about 100 % well and then it seems you are not doing so well? I find that confusing. I only wish you wellness but which is it?
Posts: 267 | From South | Registered: Oct 2011
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posted
Cured? I wish there was a cure. Remission? Very close. I am having days when I feel 100% my doc is waiting until I'm 2 months symptom free before going of abx.
Posts: 845 | From Northeast | Registered: May 2011
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posted
There are people who are cured. Those that get on abx after a bite right away, those who have early disseminated and even those with late stage Lyme. Believe in a cure it does exist. I guess I was confused by your post since you mentioned you were about to post it as a success story. That will ne nice when you do. :-)
Posts: 267 | From South | Registered: Oct 2011
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
RC1, it is probably better not to talk about Lyme much to the average person, unless they are really interested, and come here and the local support group for understanding.
Kind of like war veterans do. They know civilians can't understand what they've been through so they avoid discussing it with us.
The problem is with this illness, you might not be able to be sociable or talk on the phone, or you may be severely depressed or your behaviours may change - all the things that lyme does, so people want an explanation.
But how to explain? I think telling them to watch Dr. Phill's show on chronic lyme disease is a good place to start. (Have people watch the uncensored version - I hear it is better.)
I wish he would joing the campaign to help us, but I appreciate the show he did.
RC1, your improvement gives me hope. I'm happy for you.
Posts: 1358 | From Midwest | Registered: Apr 2009
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