posted
I met a woman today who has neuropathy. I asked if she was diabetic and she said,"no." My next question was, "do you have lyme?" She said she had tested negative. I told her that the tests were often inconclusive if not wrong and gave her this site and my llnd's name. I don't think I made an impression. Would you have said or done anything differently? I probably will run into her again.Is it a case of,"You can't tell anyone anything until they are ready to listen."
Posts: 482 | From Oregon | Registered: Feb 2011
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
You did it right.
The more adamant you are the more resistant people get. People don't want to believe because when they read about chronic lyme it's too overwhelming and devastating.
I always say, "there's a way to get better but it involves a 200 dollar lyme test through Igenex. I've helped others with _____(insert symptoms here) and they are better now."
That's really all you can do. If you are pushy, they get defensive and think that you're just pushing your illness out on others.
posted
Yes, the ball is in her court now. I hope she thinks about it!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Otter,
Considering the state in which you live, indeed, you are always correct helping to provide some information to those who may never hear it (as MDs have so censored lyme in Oregon).
Glad you gave her your LL NDs name. That is the best move of all. Then you can not have to think of all the aspects of this.
In the future, for those with money flow challenges, you might also let them know about the NCNM Clinic, sliding fee scale. . . and also one over at OCOM. But be sure the inquire at either place for someone with lyme knowledge as not all NDs or LAcs have that.
Perhaps, carring a business card, not with your name on it, but 3-6 links and the Portland Lyme Support meeting detail. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For such an informational card to hand out, you might find appropriate "quick" links among these:
Some of the groups in the first set have a brochure (especially the LDA). You could carry a couple of those and then add a card for local LL NDs and local support group connection. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
You tried, which was a good thing. You never know someday the information might click and they will get help.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
otter after a long time and waste of my energy i have learned to do exactly as you did
i usually add "i wont bring this up again but if you have any questions call me"
then you really need to turn off...you did your best...you cant stress over others cu you have to take care of yourself\\
i have had lots of practice with so many in my family sick and in denial
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I have run into the same thing. People just don't want to hear it.
Some want to stay sick, some think we don't know what we are talking about, and others are just plain afraid.
We do what we can and the rest is not up to us. Took me a longgggg time to learn this lesson.
Posts: 620 | From Ks | Registered: Oct 2011
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Even if it didn't help her, she might pass it on to someone else who will benefit.
It is a small world!
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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