Just think how many will get babesia, bartonella, RMSF, ehrlichia, etc.
I hope they tested the ticks for all of the above and more... but you know they DIDN'T!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This needs to be stopped before they gather even one participant.
So many things very wrong about this, so many. There is no way to find with certainty, or assure that any particular tick is disease free. No way.
Not only will this endager the participants, the research methods here are just so invalid. They will not find anything.
And people will suffer but it will be after the follow-up period so will be discounted.
Please help to stop this study.
I don't have the energy to do so but, for anyone who might, wonder if the groups below might be allerted so they might come together and act against this?
All I can do is suggest a place to begin is getting all these groups together in one voice against this. Hope someone has energy to propel this.
[ All are ILADS "minded" - they just each have a different focus in their mission.]
LOCAL, concentrated communication efforts in the city / state where the study is to be done.
The state and local lyme support groups in the state where this is to be conducted - and any nearby border states, too?
In addition to "regular" channels, channels for those who don't tune in the "regular" channels. -
[ 07-27-2013, 03:12 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Researchers at the university of Alberta (doctors names removed to protect them), are doing genome testing on ticks.
One tick, from Northern Italy, had 258 different bacteria genomes in it's gut...different continent, but shouldn't matter...ticks are filthy regardless of latitude and longitude!
I highly doubt that the "disease-free" ticks for this study have been tested for 258 different strains of bacteria... Probably only tested for BB... And we know how "effective" that testing is...
This is terrible! This brings to mind the same "scientific" malarky that began the Tuskagee Experiment. This needs to be stopped.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
THIS is where the funding for lyme disease reasearch is going?!? There are so many holes in this study it can be called Swiss cheese!
Who in their right mind, who has had or currently had lyme disease would vollunteer?
I was derailed by 2 ticks... Imagine the damage done by 30-40! These people will die! And because the study ends 2 months afterward, their deaths will be attributed to other causes, or cause unknown!
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
There was already an objection from lyme activists about this trial, which was ignored. Insane.
Posts: 2888 | From USA | Registered: Mar 2004
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Greta's point about: who's paying for this? really hits home, too. And not just who's paying for this, who is planning on profitting form this? They are already on the payroll at this point. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Holy Cow! I do not think there is any way "disease free" can be guaranteed! Even the best Lyme doctors think ticks likely transmit infections we don't even know about. They cannot test for those!
This is unethical. I hope no one volunteers for this.
Posts: 4681 | Registered: Oct 2000
| IP: Logged |
posted
I guess it's totally evil and mean-spirited of me to sign up all of the ducks that denied I had lyme & Co for 14 years.....one going so far as to scream at me "YOU DON'T HAVE LYME DISEASE" on the phone when I called to say I was finally correctly diagnosed and they were WRONG?
That would give them about 12 participants who can now prove to me that I was wrong to doubt them all along?
Yes, that would be evil of me. But where else can Karma be proven to exist for those perpetrators of my life's downfall? Posts: 867 | From PA | Registered: Jan 2006
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
One would think that IDSA Dr's would have no trouble participating in this study since they claim tick-borne diseases are rare, hard to get, and easy to treat.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Dekrator48, that is always my thought about those who recommend just 10 days of antibiotics, or even just "one" doxycycline capsule.
I always think, "since you think Lyme is so easily cured, why don't you go sit in a marshy area for the afternoon, after all if you get infected, all you need is "one" Doxy capsule immediately to protect you. Or ten days worth at the most. It is so easy. And this disease will only give you sore knees. Nothing to be concerned about. Go ahead and sit down with the ticks. Nothing to be afraid of."
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In addition to other issues (other infections not addressed with abx, etc.) with those doctors who think one abx - or a short course of a abx will do,
With even the very first pill in a very short time, how just doxycycline (or other antibiotic, alone) can cause chronic lyme:
Topic: replication within cystic forms of lyme -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Thnaks Keebler.
The powers that be don't want to accept the cyst form.
Why Lyme is just a friendly little critter in their eyes.
Do they have eyes?
Posts: 1358 | From Midwest | Registered: Apr 2009
| IP: Logged |
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
This "may" be the study to prove/disprove Chronic Lyme.
The volunteers would need to be treated "properly" for Lyme.
If the "disease-free" ticks can get lyme from these volunteers (the scientists being able to culture the lyme from the ticks that were on the volunteers), then there is proof that lyme can still be in your body after "proper" treatment.
So if this study is to prove/disprove chronic lyme, I wonder how "honest" their results will be?
Not sure this is "that" study, but heard the "scientists" might do a study like that.
Posts: 1358 | From Midwest | Registered: Apr 2009
| IP: Logged |
it sounds to me that by claiming the ticks are disease free, when they test the patient s and get positive results they are going to say it proves that lyme tests are mainly false positives.
I hope I'm not understanding this correctly, but that's what comes to mind for me...
Posts: 442 | From usa | Registered: Oct 2010
| IP: Logged |
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
I sent them an e-mail to ask how they can be sure the ticks are disease free. Be interesting to see if they respond.
You'd have to be "cuckoo" to be in that study.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Eek!]](eek.gif)
![[loco]](graemlins/loco.gif)
![[shake]](graemlins/shake.gif)
![[Mad]](mad.gif)
on the phone when I called to say I was finally correctly diagnosed and they were WRONG? ![[lol]](graemlins/lol.gif)
.. 
Printer-friendly view of this topic