Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I have been thinking that if I significantly improve over the next few years, that I might be tempted to try this program. It is for people receiving SSDI.
But can't help but wonder if there is a trick I'm not seeing.
Is anyone here in this program or know someone who is?
Do they like it? Or did they fail at this, which caused them to have to prove their disablity all over again to the government.
I sometimes think this is just a way to screw people.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I would wait until you improve enough to consider this. I think that as anyone who has been ill / disabled is better enough to get out there, they will want and be able to do so and it will all fall into place -- with careful thought.
You are not yet at that point so I'd not worry about it. I think it's a good idea for those who may be. With chronic illness, though, there are more mitigating factors than with some disabilities that do not involve illness. This program may be better designed for certain diagnoses than for others.
Endurance and consistency are so much like jell-O for most while trying to treat lyme. But many have succeeded in getting back to life. Still, sounds like you have a ways to go before mapping out the rest of your life.
Sounds like you are not yet ready for this but an intermediate "place" might be some volunteering. That often helps in so many ways as someone is testing out their "sea legs" again. Still, even there, reliability really matters and that really goes out the window for many with chronic illness.
While fear of support being pulled out from under when it's really essential is a concern, of course . . . and relapse is so common . . . .
. . . the thing to look forward to, though, is that hopefully some day, you will be able to live a normal life, able to do all that involves, and manage quite well. I hear the Beach Boys now "Wouldn't it be nice . . . ." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
You have to make absolutely sure you can handle the work. The people I know who attempted this and decided they could not work started a review by trying this program.
It was a major hassle and a few lost their benefits.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Never Rock The Boat!!!
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Thanks so much.
Each one of you gave such good advice and what I really wanted AND NEEDED to hear.
I panic so much about money and how I will survive.
I am turning 60 years old in January. You heard that right - 60 years old. And believe me, that makes an impact on my psyche.
While others are busy building a nest egg - mine is, well, never-mind.
Sooo...
With reard to work, what happens is I feel somewhat better (here at home - big difference than work) and I try doing more - it feels so good to be alive.
And then, post-exertional malaise. It even affects my mind (brain fog, etc.).
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