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» LymeNet Flash » Questions and Discussion » General Support » Article about one of our members

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Author Topic: Article about one of our members
sixgoofykids
Moderator
Member # 11141

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Have you seen this? One of our members has been busy!!

http://www.empowher.com/chronic-fatigue-syndrome/content/beating-me-joey-tuans-illness-becomes-engine-change

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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And just WHOM might that be?

[ 01-14-2014, 06:48 PM: Message edited by: Lymetoo ]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

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m0joey

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
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OH! How cool!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
Member # 34930

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This sounds like an absolute nightmare for insurance/medical/pharm industry if this takes off. An impartial, empirical evidence based platform for patients to communicate with each other. Good.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

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I missed how he got well? It did not mention Lyme at all,
article went from him bedridden and very ill,

to creating another Internet forum for medical issues?

Regardless, hope he is better now, seems like a hardworking enterprising young man.

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Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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droid1226
Frequent Contributor (1K+ posts)
Member # 34930

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He's not better yet. Says he's still sick but this energizes him.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
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He started the page for all kinds of sick people who have ME (chronic fatigue) symptoms, not just Lyme.

I don't think it was his intention in the short article to go through all the things that helped him get to the level of wellness that he is at now. Just like all of us, he had his own path, and all our paths are different. The point was that people can share on the site based on their own personal symptoms with people who have similar symptoms.

I'm pretty excited for him and his new endeavor.

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sixgoofykids.blogspot.com

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surprise
Frequent Contributor (1K+ posts)
Member # 34987

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I agree, quite a young man, I am happy for him.

I'll have to go back and find the group he created and visit it for support.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

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What an endeavor. Fantastic!

http://www.healclick.com/

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2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
m0joey
LymeNet Contributor
Member # 13494

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Thanks so much everyone! I was a lot more active here a few years ago and met some lifelong friends here.

On HealClick, we gather everyone's treatment experiences (on a 1-5 scale) and do our best to make sense of these results. Here are some preliminary findings: http://bit.ly/1cAZFHO Note that this is NOT supposed to be a representation of the lyme community, but simply a snapshot of our early audience.)

The ultimate goal is to see which treatments are rated highest for medical profiles, not just diagnosis. By medical profiles I mean symptoms, labs, biographical data. Someone mentioned earlier about creating an absolute nightmare. That is the goal [Smile]

Posts: 713 | From Los Angeles | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

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