lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I usually get viral meningitis followed by Lyme meningitis every winter. I don't usually have too much trouble getting IV antibiotics for the latter, but this year is different. I have a PICC line in place but my LLMD has so far failed to give my doctor the go-ahead to start Rocephin. My doctor and NP say their hands are tied, my LLMD won't call them, and meanwhile I am suffering while my NP says, "I'm sorry. I hope you feel better," as she shows my husband and me in my wheelchair to the door. I left messages on every phone line at my LLMD's asking for help. My understanding is that a nurse is currently on the line with my NP and will call me back. I hope she has good news. I'm worried about next year. I truly believe this is my last IV treatment, and I'm scared. I know there is a slew of alternative treatments but I've tried a lot of them to no avail. I just thought I'd write for support and maybe some inexpensive ideas. My husband and I just don't have the money we used to have to spend on a lot of hocus pocus. Thanks, guys. From the scared and upset Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
You know the lyme docs in your state were all targeted by the state medical board? That will affect what treatments those docs will be giving. Any lyme patient in NY who has not contacted the state reps in the legislature about this problem and is not working with the state's activists, should be.
Without those docs, lyme patients in the state and those who come from elsewhere are going to get less treatment, or no treatment at all. That is the goal of this persecution.
Posts: 2888 | From USA | Registered: Mar 2004
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
I am so sorry. I will pray for you. Hopefully it won't always be this way.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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posted
I sure hope you can get the help you need, lymelady.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I think this is just the tip of the iceberg and a portent of things to come.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I got the IV going, but it had to start with my LLMD in DC. I agree with you, randibear. Poppy, I didn't know this was going on, probably because I was doing well for so long, and my LLMD practices in DC. I guess I'd better get rolling on understanding what's going on in my state.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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