Topic: Need Articles or Links for Support for my Supporters
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
My bf is feeling helpless about my illness and does not know what to do.
It has been so long and I am still sick and he is feeling hopeless also.
Does anyone have any good article or links or advice for the people who support us.
I think if I could show him some he would feel empowered and would feel better with some direction.
ie: what other supporters have done that helped the person with lyme in their life.
that it is normal to feel this way when someone close has chronic illness.
Things to help cope etc.
Thanks in advance.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Don't know what would help or where to find it in a situation like this, but there are caregiver support groups in some places. I am not sure it matters what the chronic illness is, although it would be nice if unlikely to find one dedicated to lyme, so maybe check into groups for other illnesses. There is going to be a lot of cross over even if some of the specifics will not match.
Try googling "caregiver support" and maybe you will get some ideas on how to get help for him.
I think this is a common problem. The lyme situation is so hard on patients, it is bound to get the families and significant others down.
This might sound like not much help, but could he read the thread for success stories. Maybe see a little hope down the line.
Posts: 2888 | From USA | Registered: Mar 2004
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Thanks Poppy. Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
There are success stories at top of mrdical or support
How long have you been sick? Treating?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Lyme for 13 years, but was trucking along OK.
Rebit nov 2012. Bad neuro lyme since.
Treating for a year in april.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
The new study of the survey of over 3000 chronic Lyme patients could be helpful since it contrasts the impact of chronic Lyme and other difficult chronic conditions:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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